United Brachial Plexus Network, Inc.

man i guess i have to eat my words about 9 posts ago i aked about winging scapulars,and i said my robpi son has never had any pain or problems,well guess i spoke too soon,he has apt with ped tommorrow for pain i thought maybe he slept on it wrong as he loves sleeping on his cool army cott,which has a slight curve in it as you lay on it,so last nite i made him sleep on his reg flat bed,but hes complaing and now keeping his arm folded onto his chest,i called school nurse ask her to check it out,she calls back and says its a tic,like in ocd,im like no he has bpi she says whats that,well hes been there at school 2 yrs now and she really didnt know even though its in all records,well im serious about this now more than ever,i even emailed dr.nath and will be sending him a video,he emailed back and asked for records of emg or nerve conduction tests sorry to say his other bpi drs never did any of that so we r going to do that too,sorry so long,will let ya know what ped says tommorow.:Lin

Lin, Dr. Nath is very thorough in my opinion. He is an awesome doctor that will not cut corners. He did two of my son's surgeries and would do any others that he thought he needed.......even if I had to "SELL every earthly possession" Good luck and keep us imformed....Gayle mom to Brandon ROBPI

Lin,

Please check your e-mail as I just sent you a message regarding Paul St. John, a Neuromuscular Therapist who, in just 10 treatments of Neurosomatic Therapy, cured my 17 year old daughter's 4 1/2 year battle with Scapular Winging and Chronic Pain. His website address is www.stjohn-clarkptc.com I would be MORE than happy to speak with or e-mail anyone who has any questions as, just a short time ago, I was beyond frustrated and felt so helpless that these TOP specialists were unable to help my daughter. My phone number is 239 898-8505 and my e-mail address is soyasolutions@yahoo.com

Susan Frey

Lin, Can you give us an update on your son's pain. Did he get to see the doctor? Thanks!

hi,did go see ped he said good rom maybe just a lil pulled muscle,im like ok what muscle he has none back there..so im going to go on monday and call a local dr up here that has seen him before,his pain is gone but i want to know exactly what is wrong back there in the scapular area,hes never had any tests or mris to find out exactly what nerves were stretched,he had horners syndrome at birth,with the arm not moving until 4 mths right now good rom but still know that scapular is floating around back there ill update you soon thanksd lin

Lin, Thanks so much for giving an update. I'm so glad his pain is gone, and that you are following up with a BPI Specialist like Dr. Nath. Best wishes to your little guy!!!

I'm brand new to the forum. I have long thorasic nerve injury resulting in winging scapula and the associated pain. My neurologist wants to use botox injections. Any one out there ever tried this?