United Brachial Plexus Network, Inc.

I took my daughter to the shriners hospital in Philadelphia a couple of weeks ago to see Dr. Kozin. He said he could help my daughter's hand. Going to do a nerve transfer and some botox. We have surgery scheduled for May 4th. We have to go back up there for the surgery and then go back a few weeks later for cast removal and therapy. I contacted our local shriners for help getting us back up there and he tried to talk me into taking her to Shreveport or to Chicago. I told him I had already taken her to Philly for an evaluation and loved Dr. Kozin and that I have never heard of anybody doing this kind of surgery at the hospital in Shreveport. When I asked him about flying us up there he told me I had to contact Angel Flight. I thought the Shriners would help do that stuff for you? Anybody know anything I can do? I live in south Alabama and I paid for our tickets up there for the first visit. He also offered to drive us up there but that is to far to go driving. My daughter is 10yrs old.

Thanks,
Janalee

I don't understand him asking you to do that......Chicago has a shriners, but from my understanding......they have no BPI surgeons. I tried taht several years ago. Try again, because you may have gotten a SHRINER that was grouchy. If you went to see Dr. Kozin, they should let you finish up with Dr. Kozin. I wouldn't drive either.......that is a long way !
Gayle

hi my son is also a patient of Dr. Kozin's. call the receptionist at the hospital, they should be able to help you or tell you how to get help. i don't have the # now, but the 800 # will work.

good luck


Marlyn mom to Javier robpi

Janalee, not only is Dr. Kozin a bpi specialist but he is first and foremost a HAND specialist. I would highly recommend that you contact Dr. Kozin directly and he will help you navigate the Shriners travel portion.

Hi, my daughter had nerve transfer surgery with Dr. Kozin in Dec. We are located in NC, also too far to drive. I contacted my local Shriner, who paid for the flights for the evaluations and surgery. I agree with a previous post about calling and talking to another person. Also you should call Susan Shailey, transportation department at the Philly Shriners. Her number is (215) 430- 4177. She arranged our hotel and cabs while we were there. She might have a suggestion about your airfares. Hope that helps,

AmyB

Daughter, Scarlett, 9 mo, LOBPI

I was passed on to Angel Flight to get help getting us to the shriners hospital in Philadelphia. They don't fly that far. The lady at the hospital told me to call some guy from South Carolina. This seems to be getting so complicated.

Janalee

We live in Florida, I applied to the local shrinners & then went to philly. The local shriner paid for our flight. They seemed confused but, I insisted on seeing Kozin. Most of the shriners are so nice, I got a local sponser. I just poured my heart out to them & explained how important it was for us to go to philly. Now the second time we drove from fl to philly. Not fun! But, what I am saying is that there are people even local shriners who will help, you just have to search for them.

Im in the same boat shriners paid for our trip BUT they don't understand why i have to go there. im thinking about calling kozin to have then talk to them.they want us to go to chicago. he said there weas a hand specialist there.

Crystal,
Maybe explain to them that you dont just need a hand specialist you need a bpi specialist. Although hand specialist are great too, thats all I have ever seen, and let me tell you my hand is doing awesome!
Good luck with every thing!
Amy 18 ROBPI from MN

Many bpi doctors are hand specialists, it just depends on how much bpi experience they have. I would trust a hand specialist with bpi experience.