Help find a cure for BPI, Paralysis, and More!

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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Christopher
Posts: 845
Joined: Wed Jun 18, 2003 10:09 pm
Injury Description, Date, extent, surgical intervention etc: Date of Injury: 12/15/02

Level of Injury:
-dominant side C5, C6, & C7 avulsed. C8 & T1 stretched & crushed

BPI Related Surgeries:
-2 Intercostal nerves grafted to Biceps muscle,
-Free-Gracilis muscle transfer to Biceps Region innervated with 2 Intercostal nerves grafts.
-2 Sural nerves harvested from both Calves for nerve grafting.
-Partial Ulnar nerve grafted to Long Triceps.
-Uninjured C7 Hemi-Contralateral cross-over to Deltoid muscle.
-Wrist flexor tendon transfer to middle, ring, & pinky finger extensors.

Surgical medical facility:
Brachial Plexus Clinic at The Mayo Clinic, Rochester MN
(all surgeries successful)

"Do what you can, with what you have, where you are."
~Theodore Roosevelt
Location: Los Angeles, California USA

Help find a cure for BPI, Paralysis, and More!

Post by Christopher »

The Christopher Reeves Paralysis Act, if passed through Congress, would benefit many sufferers from many different types of disabilities! Help expedite the cure for paralysis!

30 seconds is all it takes to fill this out and send it!

There is NO controversy involving cellular science with this Act!

http://www.christopherreeve.org/c.geIML ... index.aspx

This Bill's purpose is to help connect scientists doing similar work to enhance understanding and speed discovery of better treatments and cures. As many of us know, there is very little correspondence in the medical community about our type of injury. The same holds true for individual researchers trying to find cures. A lot of research is redundant, different scientists working on the same thing at the same time, with out the knowledge of possible collaborations. This would help unify that while also making researchers more aware of previous studies that are gathering dust in laboratory closets. Utilizing the Veteran?s Health Administration facilities to improve paralysis research by tracking data within the world?s largest system of hospitals.

We are all in the same boat, so lets paddle together! Please...

Thanks,
Chris

PS - While at the site, there are three other campaigns you can support with a click of a button. They involve Stem Cells. If you have a problem with that, then don't. But if you have questions about it, then be curious and read what is proposed and what is at stake. One of them is fighting to ban the possibility of human cloning.

And once you've entered in your info, it comes up automatically again. So supporting the other campaigns is really just a click away...
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marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Help find a cure for BPI, Paralysis, and More!

Post by marieke »

Thanks for posting the link. I've done my bit.
Marieke
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
Judy-T
Posts: 557
Joined: Fri Nov 02, 2001 11:59 am
Injury Description, Date, extent, surgical intervention etc: Right arm OBPI One surgery at age 40 Ulnar nerve retransposition
Location: Florida

Re: Help find a cure for BPI, Paralysis, and More!

Post by Judy-T »

Thanks for posting this. I sent my letter.
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