United Brachial Plexus Network, Inc.

hello my name is Tonia and I am fairly new to the message board. I was wondering if there where any others who live in ohio. My daughter is almost nine and is a lobpi ( I think this is how it goes) sorry I am new to all this. I would be interested in finding anyone who has a child around the same age to email back and forth or if anyone knows of someplace that I can get her set up with an email buddy or something.

Thank you
Tonia

Tonia
Welcome to the Message boards.
UBPN provides and on line registry hopefully many more people will register so that you can contact people from your area.

http://ubpn.org/Registry/listRegist ... s&state=OH

Nancy Birk the president of UBPN lives in Kent Ohio.
I put up the link for Ohio.

Kath (adult/robpi NY)

thank you I was wondering how do you sign up for that registry? When I click on that link it just tells me who not how.

Tonia

go here:

http://ubpn.org/Registry/

Tonia:

We're from Southeastern Ohio and my daughter is 9.5 with robpi. She just had her first surgery in November and is now in her brace for 12 weeks!

I'd love to hear some more about you and your daughter!

Keri

hello Keri

We are in Wadsworth we moved here almost two years ago from arizona. Vali had her 1st surgery in Nov. of last year. She had a bicep lengthing surgery. we are going to have a hoffer procedure done in march? (we are waiting to find out the date. This surgery is like the mod-quad. My email is tignlee@hotmail.com if you want to email me. I just broke my hand two nights ago so I am not very fast at typing or getting back right now. take care and Ihope to hear from you soon

Tonia