United Brachial Plexus Network, Inc.

I just happened to be glancing through some info on here and noticed that it mentioned Tortacollis as being another bpi. Is this true?

My 6 month old son was just diagnosed with it. He's been seing a PT for it. Is he going to run into the same problems as an adult as I am running into now?

His twin sister doesn't have it.

I'm not a doctor but I have heard of many children having torticollis without being bpi injured.
My daughter has a friend and three of her four children had to have PT because of it.

Kath

You can have torticollis without bpi and you can have bpi without torticollis. Torticollis is a shortening of the muscles in the neck (mostly from disuse but could be other reasons as well). With correct stretching and exercise it can be worked out. My infant had torticollis. We did exercises. I moved things to the other side of the crib so she would look at the other side more. I played music on that side. It went away within six months. You have to work on it when you notice it, you don't want a permanent shortening.

Torticollis is not uncommon without Erb's Palsy present and it isn't uncommon to happen to a child with Erb's Palsy. I have some brief information on torticollis on my Web site if you want to look that over. I also have some great links for more detailed information on torticollis there as well.
It's at the bottom of the home page:
http://www.ctepbpicircle.com
~Krista~

Thanks. I don't think that his is bpi related. We do our pt everyday though it's a fight. I just had never heard that it was related in some cases. I know the PT said if we work on it it should go away. I sure hope so.

My older son was diagnosed and treated for torticollis when he was a few months old. I was told that his happened from a congenital cyst. or something like that. we just had to do exercises everyday, and thankfully he was fine after about 10 weeks.

Marlyn

What is bpi? My daughter was diagnosed with deformational plagiocephaly as well as tortacollis. We knew about the minor case of tortacollis when she was 2 months and thought that it was completly gone when she was 4 months. She is now 7 months old and we just found out that she still has a minor case of it. I'm trying to do all the research I can to find out more about this condition. We have been to 2 different specialist and they said different things. I have also spoke with a pt and she said something different as well. This is frusterating and confusing. Where can I find the right info?

BPI is Brachial Plexus Injury, what these message boards are for actually.

I hope you find the info you need concerning torticollis.

Marieke, 32 LOBPI

Tortacollis is also present in varities of Cerebral Palsy ie Stephen Hawking the briliant scientist. We BPI-er's can also have a variety of both BPI & CP.I am 1 of those. There are so many common medical issues also.


Carolyn J
LOBPI/CP


Message was edited by: Carolyn J

My son had Tortacollis along with his BPI injury. As a result we had to add neck exercises with his arm exercise for the first several months. He also had to wear a helmet to re-shape his head because he kept his head to one side his head was not shaping correctly. Now he is 1 and has no problem turning his head to either side. He wore his helmet for 3 months and his head looks good. I think a severe injury of BPI can result having Tortacollis in the neck. My son injury is very severe.