United Brachial Plexus Network, Inc.

hi,my name is eathar..4yrs ago my sister was born ,unfortunatly she was too big (5 kg)so they had to pull her hardly around her neck!!her left hand was totally paralysed and we were told that this is just temporary,but..she used to move her hand randomly so we thought that her hand start to recover,untill she became 4months when the doctor told us that there is a cut in her nerves and she need grafting after another 4 months,she did the operation when she was 9 months by a visitor doctor out of the country,the grafting was done using nerve fibers from her legs.
year after year there is some progression but incomplete ..wht is scaring us most is the deformation we noticed although she is undergoing physical therapy..now after all they said that she needs another operation as regard for her musles plus nerves..
our problem is that we feel that there is no one can know wht r the affected nerves and as i told u the sergeon is a visitor frome france i think!!soo difficult to keep in contact with him!!!
plz i'm asking for help ..

Hi, you should post in the General area as this is the Traumatic injury site (those who were injured in an accident and not at birth). Many parents post there and you can try in the Obstetrical area too, as that is what happened to your sister. You might get a better response that way....
Good Luck in finding your answers.
Marieke (LOBPI)

am sorry..i've send it there by mistake,but i have send it to the right place,thanx alot and hope to find answer there!!

eathar- I emailed you


MArlyn

dear marlyn,i really apreciate ur concens about this matter ,but there is the problem that i dont live in USA,and the resourses r all needing city and zip code there for registeration!!wht can i do to get help??i live in united arab emirates,dubai.
and beeing 3rd year medical student made me feel more responsible about my sister case.
so again i dont know from where to satart??
thanx alot.

Mella- I am sorry I couldn't help more. But, you should go ahead and post this message on the general message board. The majority of BPI mom's post there.
Also, keep in mind that the boards are ususally pretty slow on the weekends. The are also moms from overseas that post. I am sure someone will be happy to guide you in the right direction.


MArlyn