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NJ Members
Posted: Mon Aug 15, 2005 8:29 pm
by admin
Hi there, I'd like to talk with other New Jersey moms of children with BPI. I'm totally blown away by all the information out there and need some help being pointed into the right direction.
Thanks in advance.
Nicole
Re: NJ Members
Posted: Mon Aug 15, 2005 8:59 pm
by admin
Hi Nicole
I am not in NJ, but I am in CT. We have some people from NJ involved in our support group for the Connecticut Erb's Palsy and BPI Circle. You are welcome to join us! See my Web site for more information if you are interested in joining us.
http://www.ctepbpicircle.com
~Krista~
Re: NJ Members
Posted: Mon Aug 15, 2005 9:36 pm
by BIGJAVSMOM
Nicole- I emailed you. I am from South Jersey.
Marlyn
marlyncma@hotmail.com
856-786-0631
Re: NJ Members
Posted: Mon Aug 15, 2005 10:14 pm
by admin
I am from long island, but we go to morristown when Dr Nath is in town, feel free to email me if you need to ask questions
Elisabeth
tweetybirdkim@optonline.net
Re: NJ Members
Posted: Tue Aug 16, 2005 12:54 am
by admin
hi nicole,
i'm in randolph, morris county. e-mail me at
mcwurzer@msn.com. when yiou do e-mail me, make sure you put in the subject line: bpi mom, so i know it's not spam.
christine
Re: NJ Members
Posted: Tue Aug 16, 2005 8:51 pm
by kimhue
Hi, I have a 13yr.old daughter with Globle Palsy in the right arm.
We live in north-east PA and would love to meet other moms and just talk.
Kim and DeeDee
Re: NJ Members
Posted: Tue Aug 16, 2005 9:50 pm
by Matt's Dad
We're from southern NJ. We are in Wildwood now, but we bought a home in Millville, NJ. Anything I can help with, feel free to e-mail me.
What part of Joisey are ya from?
Re: NJ Members
Posted: Tue Aug 16, 2005 10:59 pm
by admin
I am from Morris County and am the mother of a 6 1/2 year old girl with a RBPI. Feel free to e-mail me with any questions you have.
Michele from NJ
Re: NJ Members
Posted: Wed Aug 17, 2005 10:32 am
by GiannasMom
I am in Middlesex county and would love to chat with you! My daughter is 1 with a left BPI. Contact me whenever
Re: NJ Members
Posted: Wed Aug 17, 2005 7:08 pm
by admin
Wow! Thanks for all the replies!
My daughter was born 4/24/03. Didn't move her right arm for 6 weeks. Is now about 95% better. Can't completely straighten out her arm above her head. Her shoulder blade is also winged out.
I'm so happy to finally meet people who are also going thru all of this. It's definintely very emotional. Especially since I was told I couldn't have children and then with the help of medication got pregnant and she isn't "perfect". Yes she's still perfect to me no matter what but it didn't seem that way when I first brought her home.
I really wish other families never had to deal with this ever again.
Thanks to all who are listening to me.
Nicole