United Brachial Plexus Network, Inc.

Dear Stacy, We always expect to give birth to uninjured and absolutely healthy babies.....then LIFE throws a curve. I now realize, that before becoming a mom, you just about need a medical degree. Hope things go well, for your little guy. Hope it continues to be "not severe". Best to you and your entire family. Angela

Dear Stacy,

I am so glad you are on the road to getting answers. The best advice I have is to get a referral to California Early Start (California's 0-3 early intervention program). My experience with them in So Cal has been wonderful. Especially great is the weekly support group/play group that we go to. The kids play together overseen by educated teachers and therapists while the parents get together by themselves to talk about the struggles and triumphs of raising a special needs kid.

I'm willing to bet you find a great support group like this for your child's specific condition. It's amazing how dealing with something like this can bring people together. It's great to have a place where everyone can relate to what you are saying.

Thank you so much for letting us know what is going on. Best of luck on your new journey.

Kate

Stacy,

I wish you and your family all the best, keep us posted on Evan's condition!!

Stacy- best of luck with everything, and I hope you get all the answers you need. I wish you and Evan and your family the best.


Sincerely, Marlyn

Stacy,
I hope you find the support you need for your son; there are a lot of great support systems out there.
Please feel free to visit us and let us know how everything is going, as well.
Good luck and take care!

Peggy

Stacy, thanks for the update. I'm glad that you got a diagnosis and have some steps to follow. I'm not surprised to hear that it's not a BPI b/c the more you posted the more it didn't sound like a BPI. I do hope that you find a more related support group / board. I'm sure you'll be busy, but I'd like to suggest / welcome you to still come here at least once in a while and feel free to ask any questions. Although the diagnosis is different, I'm sure you could find some info. here that is helpful regarding therapy, estim, splinting, diagnostic testing, special education needs, etc. Take care and I hope things go well for you and your family. Hope to see you around here sometime too. Also, feel free to e-mail me anytime.

~Tina, bpmom@comcast.net

bumping for Molly

I want to share that when I had my 1st consultation for my LOBPI at age 67with a BPI Specialist, he informed me that I have a combination of LOBPI and Cerebral Palsy(lower extremities). He also said that these 2 birth injuries are common in some individals with many varieties of the combination and there are alot of comonalities with both. It sure explains alot of my differences.

Both the Hemipariese(sp?!!) and our UBPN websites are very useful and informitive. Treatments and therapies are often the same too.

Thanks Kate for Bumping this up.

HUGS,
Carolyn J
LOBPI/69

My son was not diagnosed with BPI by the neurologist. He was diagnosed with a Left Hemiparesis, which is a mild form of Cerebral Palsy. So our next steps are MRI, EEG, PT and OT. Once the test results are in the Dr. will be able to tell me more. Right now I am doing research trying to find as much information as possible.

This is a great board and I felt so cared for while I was posting here. I am going to look and hope I find another board that is just as awesome regarding this new condition. I wish all of your children the best recovery and health, and all you Mom's and families the strength to continue down this road and to work hard for your child.

Love,
Stacy