dealing as a 21 year old guitar player????
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
dealing as a 21 year old guitar player????
Hi! I am looking for 21 year olds, or that age group, who are dealing with their injury. My son is having difficulty and I think he needs to know others who may be also. Would love to hear from you!
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: dealing as a 21 year old guitar player????
I am 29 LOBPI and have done everything I have wanted to do... ballet, figure skating, played clarinet for 7 yrs, became a rehab therapist, got my BA in Child Sudies and now am going into Nurisng... (yeah, I like school) and have never let this injury stop me.
email me if you like!
Marieke
email me if you like!
Marieke
Re: dealing as a 21 year old guitar player????
Kathy
I am 32yr old with robpi and having a tough time myself. You didn't mention what kind of difficulties your son is having?? pain issues? social/economic? not understanding or despising his injury? or all 3 plus? I am relatively new to this site, and before I found it I had no clue there were so many people with bpi and that the unusual "symptoms" I was trying to explain to people was actually in black in white right in front of me. There is definitly support for your son here. I'm a LITTLE older than his age group but would gladly try to help him. There is no reason he has to go through this ALONE. If I can be any help, please let me know. It takes ALL OF US to try to understand the long term effects of this injury. Even if it doesn't help us it could possibly help a child/parent gain knowledge and lessen what we have and still are going through. We must document any and all info. to create awareness of the long term effects of this injury. Please reassure him that there are people dealing with this injury everyday?? You all are in my prayers!!!
God Bless
Tracy
I am 32yr old with robpi and having a tough time myself. You didn't mention what kind of difficulties your son is having?? pain issues? social/economic? not understanding or despising his injury? or all 3 plus? I am relatively new to this site, and before I found it I had no clue there were so many people with bpi and that the unusual "symptoms" I was trying to explain to people was actually in black in white right in front of me. There is definitly support for your son here. I'm a LITTLE older than his age group but would gladly try to help him. There is no reason he has to go through this ALONE. If I can be any help, please let me know. It takes ALL OF US to try to understand the long term effects of this injury. Even if it doesn't help us it could possibly help a child/parent gain knowledge and lessen what we have and still are going through. We must document any and all info. to create awareness of the long term effects of this injury. Please reassure him that there are people dealing with this injury everyday?? You all are in my prayers!!!
God Bless
Tracy
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: dealing as a 21 year old guitar player????
Tracy & all above posters...You are trulyan inspiration to me!...Keep on keeping on,y'all!
~Hugs,Carolyn J
~Hugs,Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: dealing as a 21 year old guitar player????
Kathy, I am a 25 yr old with a traumatic brachail plexus injury. I got mine 4 days after my 21st birthday so I can understand where he is coming form too. By all means email me if you want to or ask quesitons here. I have slowly but surly gotten on with things, regardless of the injury. Good luck!!
COurt xx
P.S. Hope its ok for my TBPI butt on your boards.....
COurt xx
P.S. Hope its ok for my TBPI butt on your boards.....
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: dealing as a 21 year old guitar player????
Court
Of course it is always more than WELCOME... you are a great support person and I am always glad to see you here.
Kath
Of course it is always more than WELCOME... you are a great support person and I am always glad to see you here.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: dealing as a 21 year old guitar player????
Court & all TPI'S, YES,YES, please continue to post here. Like Kath said, your all are most welcome here....I learn soooo much from evertone,especial you, Court, & can't wait to hug you at Camp!!
~Hugs,Carolyn J
~Hugs,Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: dealing as a 21 year old guitar player????
Hi, I'm 21 going on 22. I've dealt with this problem all of my life. Although I am blessed that my injury is not too severe it has changed the way my life has and always will be dealt with. Weather it's playing guitar or simply receiving change from a drive through I seem to have trouble daily. I just found this site and if your son wants to email me and talk about it I'm open to talk.
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rachelcasa
- Posts: 729
- Joined: Mon Apr 21, 2003 11:45 pm
Re: dealing as a 21 year old guitar player????
I have always wanted to play the guitar, before my mod quad my arm was shrinking and I couldn't reach the neck of the guitar. I have regained two inches in length from surgery, some do, some don't. I am planning on taking beginning guitar hopefully next year when I am through with all my other college classes. It will be my reward for finishing school. I was also a trumpet player, a crooked one, but I still played. Just keep on following your dreams and you can achieve them! I am 33 with LOBPI.
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Whitney28791
- Posts: 6
- Joined: Sat Jul 23, 2005 8:15 pm
Re: dealing as a 21 year old guitar player????
I'm a 19 y/o female with an OBPI. Of course we all know that no matter how severe BPI effect our everyday lives. I recently found this site and I think it is very important for all of us to talk and support each other. Kathy, you or your son can e-mail me anytime. 
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