We need to bombard

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
dmom
Posts: 363
Joined: Tue Jul 06, 2004 2:36 pm

We need to bombard

Post by dmom »

I just picked up a free copy of the July 2005 "American Baby" magazine in my pediatrician's office today. I noticed an article called "The Overdue Blues," written by a doctor. She's talking about issues related to going past your due date. I wanted to share one paragraph in particular with you all, related to your baby "growing too big":

"One potential risk is called shoulder dystocia, which occurs in about 1 percent of all vaginal births. Dystocia occurs when the baby's shoulders get caught up under a woman's pubic bone. This may lead to TEMPORARY DAMAGE of your baby's shoulder or arm during labor, and often a large vaginal or perineal tear for you."

Excuse me ... TEMPORARY DAMAGE? Sure, that's true that children do recover - but what about all the rest of our children who have PERMANENT DISABILITIES?!?! (sorry for all the caps ... I'm SO TICKED OFF! I mean, how irresponsible of a doctor to leave pregnant women with the impression that the worst they have to fear from shoulder dystocia is "temporary damage" to their precious children!)

Anyway, I am going to write a letter to the editor and gently let them know that that this "temporary damage" has a name (BPI) and that not every injury is temporary. If some of you wrote in, too, I think that would be great and let this major magazine know about BPI.

C'mon, Lisa, I know you want to be first! :-) "Hey, I've been on Dr. Phil, people! Listen up!" Ha, ha!

Janet
dmom
Posts: 363
Joined: Tue Jul 06, 2004 2:36 pm

Re: We need to bombard

Post by dmom »

That thread title was supposed to be "We need to bombard American Baby!" Too long, I guess. Sorry!
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: We need to bombard

Post by admin »

Janet,

Thanks so much for sharing this. I'd love to see a formal UBPN response to this. In addition, I think I'll write something about 5 years, 1 surgery, and 1,000 various medical appt's, and STILL waiting for this temporary damage to recover!!!!

Janet, could you post the name and addy for where we should direct our letters? Thanks.

I think everyone should keep their eyes open for opportunities to respond to these types of articles.



Lisa D
tracy1972
Posts: 52
Joined: Mon Jun 27, 2005 9:35 am

Re: We need to bombard

Post by tracy1972 »

Yes, please post the address.
I would be delighted to let them it is not a temporary
injury being I am 32 yrs.old with robpi and having other problems related to this as they say "temporary injury".

Tracy in Tennessee
cindyh
Posts: 47
Joined: Fri Jan 07, 2005 10:55 am

Re: We need to bombard

Post by cindyh »

Yes, Please post the address.
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: We need to bombard

Post by admin »

I hope this doesn't sound too lazy, but might help more people to get a letter done. If anyone can share a draft that the rest of us can tailor a bit to our own story, that might help more people to get it done. I have all the best intentions of doing it, but the day flies by (yes, I should do it right now, but it's time to feed the baby!). Just a suggestion...thanks.
BIGJAVSMOM
Posts: 503
Joined: Tue Apr 12, 2005 4:11 pm

Re: We need to bombard

Post by BIGJAVSMOM »

Arggggggggggghhhhhhhhhhhhhhhhh!!!!!

I too was told, " It will be fine in 2 weeks"

So mad about that, temporary my foot.
cindyh
Posts: 47
Joined: Fri Jan 07, 2005 10:55 am

Re: We need to bombard

Post by cindyh »

I agree with Jason's Mom. I am terrible at staying on track when writing and saying the right things. Some people on this board write such great posts!
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: We need to bombard

Post by Kath »

They told my Mom it would heal... that was 65 years ago --- how long will it take....grrrrrr I hate when I hear that.
Kath
Kath robpi/adult

Kathleen Mallozzi
CW1992
Posts: 860
Joined: Fri Nov 02, 2001 12:41 pm

Re: We need to bombard

Post by CW1992 »

Kath! Your reply cracked me up!:) Reminds me of Brittney when I told her what the doctor told me about her "being just fine in two weeks" after she was born ..... just wait and see..... A few years back I remember her telling me very sarcastically "Well I'm WAITING!!! How long do I have to WAIT???". She's only been waiting 13 years - you've been waiting 65 - You win!!:)
I've always thought that 'Baby magazines' was the way to get this injury out there. I know that personally I read EVERY one before she was born because I was so excited about becoming a Mom and wanted to do everything right. I had never even heard of her injury before it happened... just like I'm sure the rest of y'all out there. If I would have read something BEFORE maybe things would be different.
Christy
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