Hello
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AndreaJack
- Posts: 24
- Joined: Sat Jun 11, 2005 9:13 pm
Hello
Hello everyone. I am Andrea. I am married to Chad and we live in IL. I have a 2 year old son, Jack, ROBPI, and a 1 year old daughter, Madeline. Jack has had 2 surgeries so far. He had the mod quad last September and the triangle tilt in May. He will be coming out of his splint next week. I have read posts in the past, but now feel like I can post also. I just wanted to introduce myself and say hello. I look forward to getting to know you all.
Re: Hello
Hi Andrea. Welcome! How is Jack dealing with all of this? How about Madeline? You must be very busy!!
Have you used the online registry here? You may be able to find other families near you.
Keep us posted on Jack's progress.
Take care!
Peggy
Have you used the online registry here? You may be able to find other families near you.
Keep us posted on Jack's progress.
Take care!
Peggy
Re: Hello
Hi Andrea
I'm new here too - lovely to meet you.
I'm Kathy and I live in the UK with my partner and 3 kids, the oldest (now 10) has a right Erb's Palsy.
I'm amazed by the amount of knowledge US mums have about their child's precedures and even which nerves are damaged. Over here I've basically been told Erb's Palsy and have yet to learn about what nerves were damaged and what all these procedures mean. My son had exploratory surgery and scar tissue removed at 3 months, and has had two sub scapular releases since. That's all I know about, and to be honest I don't even know a lot about that!
Anyhoo, I'm waffling on, lovely to meet you.
Kathy
I'm new here too - lovely to meet you.
I'm Kathy and I live in the UK with my partner and 3 kids, the oldest (now 10) has a right Erb's Palsy.
I'm amazed by the amount of knowledge US mums have about their child's precedures and even which nerves are damaged. Over here I've basically been told Erb's Palsy and have yet to learn about what nerves were damaged and what all these procedures mean. My son had exploratory surgery and scar tissue removed at 3 months, and has had two sub scapular releases since. That's all I know about, and to be honest I don't even know a lot about that!
Anyhoo, I'm waffling on, lovely to meet you.
Kathy
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cherie_hohertz
- Posts: 139
- Joined: Wed Sep 17, 2003 9:45 am
Re: Hello
Hi Andrea!
Welcome to the boards. I hope you find this group to be as helpful and welcoming as I have found it to be over the years.
I'm Cherie, wife to Jason, and mom to Sarah (2 1/2 - ROBPI). Sarah has had the MQ and will have the Triangle Tilt in August.
I'll look forward to getting to know you!
Cherie
Welcome to the boards. I hope you find this group to be as helpful and welcoming as I have found it to be over the years.
I'm Cherie, wife to Jason, and mom to Sarah (2 1/2 - ROBPI). Sarah has had the MQ and will have the Triangle Tilt in August.
I'll look forward to getting to know you!
Cherie
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Hello
Hey Andrea
It was nice to talk with you yesterday! I think you will find this board very helpful. I hope Jack is doing well with his splint today. Hopefully the remaining time will fly by for you guys! Talk to you soon.
~Krista~
It was nice to talk with you yesterday! I think you will find this board very helpful. I hope Jack is doing well with his splint today. Hopefully the remaining time will fly by for you guys! Talk to you soon.
~Krista~
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BIGJAVSMOM
- Posts: 503
- Joined: Tue Apr 12, 2005 4:11 pm
Re: Hello
Hi Andrea and Family-
I have been coming to this biard for a few months. Everyone is so welcoming, caring and sharing. Welcome..
oh- I am Marlyn, married to DiLeonne with 2 boys. Manny is 5 and Javier (ROBPI) is 1. He had primary w/ nerve grafts in February.
*Marlyn
in VA moving in 1 week to NJ
I have been coming to this biard for a few months. Everyone is so welcoming, caring and sharing. Welcome..
oh- I am Marlyn, married to DiLeonne with 2 boys. Manny is 5 and Javier (ROBPI) is 1. He had primary w/ nerve grafts in February.
*Marlyn
in VA moving in 1 week to NJ
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Hello
Hi,
I am from chicago and wanted to include the support group link for that area if your close enough.
http://www.chicagobpi.com/
I am sure you already have it but just in case.
I am from chicago and wanted to include the support group link for that area if your close enough.
http://www.chicagobpi.com/
I am sure you already have it but just in case.
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Hello
Hi Andrea & Kathy M
Welcome to UBPN Message Boards. You will find a great deal of support here and and I am sure will be able to give a great deal of support as new families arrive seeking information.
I am Kathleen M... aka KathyM aka Kath... I finally settled on Kath for my sign in because when I first came to UBPN there were so many kathy's and Kathleen's... LOL...When I settled on Kath... I said I will never change my name again... LOL... I am getting to old and might forget who I am. Besides most of my friends just call me Kath ... My family still use Kathleen.
I am on the Board of Directors of UBPN and right OBPI. Married for almost 40 years three children and 5 grandchildren... I live in NY
Kath
Welcome to UBPN Message Boards. You will find a great deal of support here and and I am sure will be able to give a great deal of support as new families arrive seeking information.
I am Kathleen M... aka KathyM aka Kath... I finally settled on Kath for my sign in because when I first came to UBPN there were so many kathy's and Kathleen's... LOL...When I settled on Kath... I said I will never change my name again... LOL... I am getting to old and might forget who I am. Besides most of my friends just call me Kath ... My family still use Kathleen.
I am on the Board of Directors of UBPN and right OBPI. Married for almost 40 years three children and 5 grandchildren... I live in NY
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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Tanya in NY
- Posts: 935
- Joined: Mon May 03, 2004 10:51 am
- Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
- Location: NY State
- Contact:
Re: Hello
Welcome to the boards and this lovely support community!
My name is Tanya. I'm married to Sean and we have 2 children. Casey turned 10 years old this spring (he has no injury) and Amber is 2 1/2 years old (ROBPI). Amber has had only one surgery this past December. It was the ACR with Kozin in Philadelphia.
We live in Upstate NY.
Welcome again.
Tanya in NY
My name is Tanya. I'm married to Sean and we have 2 children. Casey turned 10 years old this spring (he has no injury) and Amber is 2 1/2 years old (ROBPI). Amber has had only one surgery this past December. It was the ACR with Kozin in Philadelphia.
We live in Upstate NY.
Welcome again.
Tanya in NY
Tanya in NY
Amber's Mom, ROBPI, 13 years old
Amber's Mom, ROBPI, 13 years old