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New Brachial Plexus Palsy Foundation Site

Posted: Thu Jun 09, 2005 10:20 pm
by Brenda333
Check out the New Brachial Plexus Palsy Foundation Site.

http://www.brachialplexuspalsyfoundation.org/
FYI

Re: New Brachial Plexus Palsy Foundation Site

Posted: Fri Jun 10, 2005 10:59 am
by admin
bump

Re: New Brachial Plexus Palsy Foundation Site

Posted: Fri Jun 10, 2005 11:00 am
by admin
Pretty good site. We need to continue to be recognized and this helps alot.

Thank you

Re: New Brachial Plexus Palsy Foundation Site

Posted: Fri Jun 10, 2005 11:27 pm
by Mandie
I was gonna sign up for the message board, but, why do they need your telephone number? :/ Do you know?

Re: New Brachial Plexus Palsy Foundation Site

Posted: Sat Jun 11, 2005 9:05 am
by Allison
Yes, phone numbers are needed so the caretakers can contact folks to make sure they are who they are. This is a private message board. There will be no doctors, lawyers, or guests allowed.

Re: New Brachial Plexus Palsy Foundation Site

Posted: Sat Jun 11, 2005 9:17 am
by jeni
I was contacted yesterday....and had a really wonderful conversation with the caretaker. They just want to verify you are who you say you are.

Re: New Brachial Plexus Palsy Foundation Site

Posted: Sat Jun 11, 2005 10:28 am
by cbe411
Wouldnt it be great if we didnt have so many guest posters around here????

Re: New Brachial Plexus Palsy Foundation Site

Posted: Sat Jun 11, 2005 10:31 am
by cbe411
Sorry let me continue with this.... not allowing guest posters ONLY makes the individual 150% responsible for what they post. UBPN offers guest posting for those in litigation but people abuse it and post as guest to start trouble or who knows why.... just my two cents.

COurt xx

Re: New Brachial Plexus Palsy Foundation Site

Posted: Sat Jun 11, 2005 10:54 am
by Mandie
I understand about the thing with the no doctors, etc.. but if a person has been around the bpi community for a while, I don't see the need. I don't feel comfortable putting my telelephone # on the internet for a stranger, so I will just stick to this place. No biggie, I was just wondering.

Thanks Allison!

Mandie

Re: New Brachial Plexus Palsy Foundation Site

Posted: Sat Jun 11, 2005 1:15 pm
by Chloesmom
I was contacted this morning by the caretaker-also a great conversation (with another BPI mom). I think it will be a great site.