Philadelphia-Kozin

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Brenda333
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Joined: Mon Nov 18, 2002 6:59 pm
Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
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Philadelphia-Kozin

Post by Brenda333 »

We will be seeing Dr. Kozin on June 10th. Where is the best place to stay, and see things? Anyone else have an appointment that day?
Brenda
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Re: Philadelphia-Kozin

Post by admin »

The Ronald McDonald houses in that area are awesome, completely free except for a $5 key fee, and public transit accessible. Call Shriners to ask their help in finding a placement in one of those houses.

Best to you....


BIGJAVSMOM
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Re: Philadelphia-Kozin

Post by BIGJAVSMOM »

Hi Brenda- Our appointment got rescheduled for June 29 because of strept throat. But I am from the area. I suggest staying in New Jersey. Minutes away from Philly but a lot cheaper. One great hotel is the Four Points Sheraton on Rt. 70 in Cherry Hill. There are many modes of public transportation to get you to and from the hospital. Sesame Place is close. Aquarium is in Camden and of course the zoo. Hope this helps a little. Good luck with everything.
Marlyn
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Tanya in NY
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Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
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Re: Philadelphia-Kozin

Post by Tanya in NY »

You should look at the thread listed below. It has lots of places listed where you can stay and things to do.


http://ubpn.org/messageboard/thread ... read=11324

We stayed at the Holiday Inn listed below. We asked for the Shriner's rate and got $82 plus tax per night. The room was great. We got a king sized bed and a pull-out sofa bed in our room which easily worked for us all. The room was clean, roomy, and the staff was very helpful. There's a TGIFriday's right next to the parking lot. There's also a Denny's next to the parking lot. (Hint, go early to Denny's as it gets busy quickly.) There's even a restaurant in the hotel lobby that was okay in my opinion. There's an indoor pool (we didn't have time to check it out though). And here's a great plus...free parking unlike many other places. It's right at a busy intersection, but I felt very safe in this area, compared to others. It's not in downtown, and it is only about 15 minutes away from Shriner's by car (very easy to get there, too). We used mapquest.com for directions and they were quite accurate for driving. If you are coming to town by plane, I saw a van shuttle labeled for the airport in the parking lot, so there must be shuttle service from the airport, too.

We are planning on using this hotel again in the future. We've stayed at a couple hotels and B&B's in the past, but for the price and convenience of location and parking, this is definitely a great place to stay!

Good luck with your appointment with Dr. Kozin. Know that he is a very kind and knowledgable doctor. Best wishes.

Tanya in NY

Holiday Inn Philadelphia City Line
4100 Presidential Boulevard
Philadelphia, Pennsylvania 19131
Phone: (215) 477-0200 ? Fax: (215) 473-5510
Toll Free: (800) 642-8982
Tanya in NY
Amber's Mom, ROBPI, 13 years old
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Re: Philadelphia-Kozin

Post by admin »

This bpi family website has some helpful information. Just click on Shriners page.

http://www.franklinfamilybpi.com/

The house in Camden is much nicer than the Philly house and they have a free shuttle if you don't have or rent a car. It is a blast for the kids and we really enjoyed staying there. It isn't in the safest neighborhood, but they don't have any issues and have a security system, locked gate parking, etc. There is a great aquarium there as well and you should be able to get free passes from the Ronald McDonald House. Sometimes the house is full or it is reserved for kids having surgery or post-surgery appointments, so there may not be openings. I would look into it.

Hope you have a good appointment. Dr. Kozin is excellent and highly respected.


katep
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Re: Philadelphia-Kozin

Post by katep »

Actually the Ronald McDonald house requests $15 a night donation, but sometimes Shriners pays the bill.

We liked the Ronald McDonald house, but you really get the most benefit if you are there for an extended stay (like a week). That way, you get to know people and get into the whole groove of the house :) It's sort of like a campout, with communal dinners, etc. But I don't think it would be that great for just an overnight visit. It isn't really that convenient and the drive across the bridge is a B****H! It's also in a scary part of town and you have to drive through a scary part of town to get there. We really enjoyed the Holiday Inn at City Line, where we stayed when Joshua had his surgery. It's a nice area, has restaurants within walking distance, and the drive to the hospital is really pleasant. We'll be staying there again June 28th for Joshua's followup appt on the 29th.

Kate
Jenny
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Re: Philadelphia-Kozin

Post by Jenny »

We just came back from Philly and had a very good visit with Dr. Kozin. I don't have any info about hotels since we stayed with friends. On parking, you want to be careful since Shriner's parking is right in the middle of the building between 2 very small yellow Shriner's flags. The entrance is kind of like a hotel drive-through entrance. We missed for the first time and had to drive around to get back to Broad street.

Good luck!

Jenny
katep
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Re: Philadelphia-Kozin

Post by katep »

Oh, Jenny! You are so right!

"Ok baby, turn right up there."
"Honey, turn there."
"Turn right here!"
"What happened? I said TURN!?!"
"Umm, that was it back there..."

Urgh. The U-turn to get back and try it all again was even worse!

Kate
Joann in PA
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Re: Philadelphia-Kozin

Post by Joann in PA »

Hi Brenda! Our son, Joey, has an appointment on June 10th with Dr. Kozin. Maybe we'll see you in the waiting room! ~~Joann
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Re: Philadelphia-Kozin

Post by admin »

we were in Philly in may we stayed at holiday inn
it is better to take a cab & request to get there the quick way shriners is great place in a not so wonderful location & kind of difficult to find once u find it is so great & comforting
michelle in tampa
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