United Brachial Plexus Network, Inc.

HI! I just found this board and want to introduce myself. I have a nephew who will be 3 in July, he has brachial plexus palsy from a birth injury. He has been in PT since he was 3 months old and is scheduled to see a neuro surgeon in 2 days to be evaluated for a nerve transplant. He had an EMG at 6 months which showed that he does have continuity of his nerves. But at this point he is developing "frozen shoulder" and has been showing neglect for over 6 months now, which his therapist says is normal for his age.

My questions are really in regards to surgical intervention. For those of you who have had this kind of procedure done, have you seen any significant improvement, and do you reccomend this procedure. From what I understand, Texas is the only childrens hospital who preforms this procedure.

Also, for those of you who have dealt with this as a birth injury, have you persued this legally? My brother and sister-in-law are currently in the process of litigation and I am wondering how your cases stood in court.

Any help you can provide would be appreciated

Hello and thanks for sharing on the message board. I can't answer any of your questions, because my daughter did not have this type of surgery, and we are in the midst of our own legal case, so I can't tell you of a result. I just wanted to welcome you and tell you that you are a great aunt to be doing research for your little guy. I certainly hope that he does well with this surgery and he gets the results they are all hoping for.

God Bless,
francine

http://www.injurednewborn.com
I welcome a picture, if your nephew would like to share.

frozen shoulder SUCKS from what I understand
My mom had it...no BPI...just frozen shoulder, I have not heard of that happening too often, especially not at age 3 I am so sorry...
I have nothing to offer you on surgical advice but wanted to offer that I have found chiropractic to be a wonderful treatment for my son, turned 3 in January, also, my mother resolved a severe frozen shoulder that the docs told her could only be resolved by surgery(this was in Orlando by the way, Texas is no where NEAR the only hospital doing BPI or frozen shoulder surgeries)she resolved hers completely with therapy and chiropractic, part of why she was so adament about me taking my son to a chiropractor for his BPI-
but it might not be the answer for your nephew, I just thought Id mention it~
blessings of painfree recovery~ mary