Early Childhood Care Question

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Medlin
Posts: 22
Joined: Thu Sep 09, 2004 6:01 pm

Early Childhood Care Question

Post by Medlin »

Hi. I haven't posted in awhile but I had a question for any of you who have used the early childhood care offered by the public school system. My daughter Zoe has a robpi yet she functions very well. I am concerned that she is going to be too smart to get into this program. She really needs the OT the school would offer, but mentally she is considered advanced. Has anyone faced this problem, and if so is there a way to fight any decisions made? If she isn't accepted into this program we won't be able to continue with her OT as our insurance won't pay for it and we can't afford it out of pocket. I am very frustrated right now, and any advice or comments will be greatly appreciated!

Thanks!
Zoe's mom
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Early Childhood Care Question

Post by admin »

Our daughter is 19mo. now. She goes to PT/OT and now speech 3x's a week. When the doctors ask how much therapy is she getting, the answer is about 3-4 hours a day. We do A LOT at home. It's a challenge, yet her four brothers have been conditioned to not interfere with us when I am working one on one with her. I make up things for them to do along with us as well. I know this is going to go on for years...poss. ever... but I also know that her recovery is up to me. I think I've always known that. I learn all that I can from all kinds of sources, invent things, rig things, whatever it takes.
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Cara
Posts: 497
Joined: Mon Nov 05, 2001 9:34 pm
Injury Description, Date, extent, surgical intervention etc: My oldest daughter suffered a LOBPI. We were sent home form the hospital without being told anything was wrong. She had nerve graft surgery at one year of age, tendon transfer and release at 3 1/2 yrs of age.
Location: Indiana

Re: Early Childhood Care Question

Post by Cara »

My dughter is 4yr old and is in the early childhood program. She is very bright and was testing above age for verbal and cognitive skills. She had deficits in fine and gross motor skills which allowed her to qualify for the program. Last year she went to a preschool 2 days a week and got OT services. Because she was functioning above age level they decided to place her in a community based preschool. She was with other children who did not have developmental delays. Transportation and the cost of the program was covered by the school system. we moved to another state over the summer. She is now in aprgram where she is in a regular ed. preschool room 4 days a week (that is all that is offered by the school) and goes to a special ed class on Fridays. She still recieves OT services at school and transportation. When you into the IEP meeting be ready to explain how BPI keeps your child from learning/performing age appropriate tasks. I focused on self care, playground safety, phys. ed. and art. Sometimes it is hard to get people to understand that fair and approriate education includes more than cognitive development.
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Tanya in NY
Posts: 935
Joined: Mon May 03, 2004 10:51 am
Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
Contact:

Re: Early Childhood Care Question

Post by Tanya in NY »

Cara,

Hello. My name is Tanya and I have a 2 year old daughter named Amber with ROBPI. We are currently getting ready to transition from the Early Intervention program into the 3-5 year program that is supported by our school district. You said that you need to go to the IEP meeting ready to explain how BPI keeps your child from learning/performing age appropriate tasks. You said you focused on self-care, playground safety, phys. ed, art. Can you explain more specifically what you said or presented as evidence during your meeting to make the CPSE chair understand? Our chairperson isn't very giving when it comes to programs (as I've found out with my older child) and I would like all the information I can gather to bring to our meeting down the road. Thanks in advance.

Tanya in NY
Tanya in NY
Amber's Mom, ROBPI, 13 years old
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Cara
Posts: 497
Joined: Mon Nov 05, 2001 9:34 pm
Injury Description, Date, extent, surgical intervention etc: My oldest daughter suffered a LOBPI. We were sent home form the hospital without being told anything was wrong. She had nerve graft surgery at one year of age, tendon transfer and release at 3 1/2 yrs of age.
Location: Indiana

Re: Early Childhood Care Question

Post by Cara »

Rosalynn had a lot of issues with balance initially, she would fall easily and could not catch herself. also steadying herself on stairs was an issue. Holdign herself upright on a swing and climbing a ladder for a slide of playground toy where concerns. HEr lack of supination in combination with other issues meant difficulty using a soap dispenser or paper towel dispenser when washing her hands. Uh-oh, I'm about to loose my connection, server is going down. I'll post more later.
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