A lady in my church is doing research on effects of chronic pain in a family. I hope that some of you will take the time to fill this out or have your family fill it out. I think the results could help us all by bringing to peoples attention how much our families have suffered along with us.
The site is http://www.familypainstudy.com/
I plan to use the results in my suit to show just what this has done to all 7 of us in my family.
Chronic Pain Study
Re: Chronic Pain Study
This is a wonderful idea, as is anything that increases awareness about chronic pain!
I understand from the instructions that this survey is only for the "families" of the chronic pain sufferer and not to be filled out by the person who is diagnosed with chronic pain...so, I guess I am ineligable...but I will ask my hubby if he take the time to complete it.
I would love to see the final results though, if they will be available...as would the American and Canadian Pain Societies, I'm sure!
I understand from the instructions that this survey is only for the "families" of the chronic pain sufferer and not to be filled out by the person who is diagnosed with chronic pain...so, I guess I am ineligable...but I will ask my hubby if he take the time to complete it.
I would love to see the final results though, if they will be available...as would the American and Canadian Pain Societies, I'm sure!
Re: Chronic Pain Study
Since I know the reseacher, I will make sure she understands how important we find her study and ask that all results be avilable to us if for any reason the school does not disclose them.
I am having my hubby do it and hope that many other spouses or sig. others will participate. We can all benefit from any hint of real understanding to what our families have to deal with.
Shanna
I am having my hubby do it and hope that many other spouses or sig. others will participate. We can all benefit from any hint of real understanding to what our families have to deal with.
Shanna
Re: Chronic Pain Study
PS should I post this on general board as well to help get attention to it??
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jennyb
- Posts: 1183
- Joined: Fri Nov 02, 2001 5:24 pm
- Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.
Re: Chronic Pain Study
I'd love to see someone doing a study on how the person diagnosed with chronic pain is affected! The effects on my family are minimal (a far as I know, haha....) because I turn myself inside out to make sure they aren't affected-but I've asked my husband to fill in the survey just in case he's faking too....:0)
Chronic pain is something that most of us have just had to accept,or you face having no life at all and it sucks. Some people I've supported in the past have suffered marriage breakups as a result of how the pain or the meds they take to deal with it affects them.
I really am starting to get weary of how little interest many bpi specialists and almost all GP's show in the pain , which I know for many of us is the worst part of the injury. If only there was a way to make doctors feel how it feels, just for say, ten seconds.....every clinic would have a dedicated pain team in no time!
Sorry, having an embittered day....Take care all.
Jen NZ
Chronic pain is something that most of us have just had to accept,or you face having no life at all and it sucks. Some people I've supported in the past have suffered marriage breakups as a result of how the pain or the meds they take to deal with it affects them.
I really am starting to get weary of how little interest many bpi specialists and almost all GP's show in the pain , which I know for many of us is the worst part of the injury. If only there was a way to make doctors feel how it feels, just for say, ten seconds.....every clinic would have a dedicated pain team in no time!
Sorry, having an embittered day....Take care all.
Jen NZ