Back from Texas - and MORE NEWS! Not all good!
Posted: Sun Feb 10, 2002 12:21 am
Well - we're home from Texas - another trip down! Things are going great - and Cassidy is doing wonderfully!
I have to tell you - this trip - we used the phone number for Robert Soto's town car service from Houston Intercontinental Airport to the Hotel and from the Hospital back. It was WONDERFUL! WAY BETTER THAN A TAXI! I encourage ANYBODY who's going to Texas to use his service - his # is listed on Francine's web site under "Traveling to Texas". He picked us up at the airport - we got our bag and walked out the door to see a man holding a sign with our name on it - he took our bags and put us in a Lincoln Town Car and drove us to our Hotel all the while chatting and being VERY friendly. He then told us to give him a call the night before we wanted to leave and let him know where and what time - and so we did - and another driver picked us up at the hospital and took us back to the airport - same thing - nice friendly driver - helped us with our bags - and for THE SAME COST AS A TAXI!! $90.00 round trip - which is the same exact cost of a taxi!
The new renovations at the hospital were GREAT! Saved us a hotel room for 2 nights! The couch pulls out into a full size bed and isn't like a Serta - but it's comfortable enough! They supply you with as many pillows and blankets as you want - the thermostat controls only your room so you can keep it as warm or cool as you like - sooooo much room for your bags or anything else you bring. . .. private TV/VCR - so bring videos! AND YOUR OWN BATHROOM WITH YOUR OWN SHOWER! GREAT! Although the water pressure in our room wasn't too hot - the shower fit the purpose!
And as always - everyone is soooooo nice there! Cassidy just loved her nurse! Still talks about her now - says "my Nurse - Monica - she took care of me - and gave me medicine - and made me feel better!"
We've taken a break away from the board for awhile - just been really really busy! As some of you know I've been working 2 jobs - and of course the doc visits and therapy and you name it - plus, Darian (8 years old) has had some issues lately too! She was recently (about 4 months ago) diagnosed with Bi-Polar disorder (runs in our family - my father is also Bi-Polar) - her's is called "Early Onset Bi-Polar Disorder" and she is catagorzied as ultra-rapid cycling - which means she can go from very very hyper and happy to very very depressed and sad all in a couple hours (sometimes a couple minutes). So we're on our 3rd round of meds - and this time she's taking Depakote - which requires monitoring of her liver - so that means "Blood Work" - which for her is terrifying. So we went for our first blook test - at which time we found that her right arm does not extend all the way! (Some of you know - Darian was also hurt at birth - just not as badly as Cassidy - she had a broken collarbone - and a slight stretch - 4 months of PT and back to normal) - but it kills me that I never noticed that her arm doesn't extend fully! She's 8 years old - why didn't I notice that! Needless to say we went to the ped's office -she got her blood drawn - was upset and crying - so they had her lay down (which is when the nurse found that she can't extend her arm) and finally when the draw was over we were getting ready to leave - and the next thing I know Darian is face down in the doctors office having a seizure. Scared me to death! Soooo - the nurse had me help turn her over and the seizure passed - she went and got her Doctor who came in and checked her over, her blood pressure was a little low but that wasn't abnormal since she just had the seizure. . . he feels it was most likey just because she hand't eaten that morning yet and her blood sugar was low - coupled with the anxiety from the blood test...but just to be safe sent her for an EEG (which she had done on Thurs) and she is being referred to an orthopedist for her arm!
So now here we go - we have Cassidy and her Therapy appts and surgeries and treatments - now Darian will be added to the list (hopefully only therapy but we'll have to see what the orthopedist says) and Bi-Polar - blood work - and psychologists. . . . .
DOES IT EVER END?
I'm drained. I feel like I have NO time. I don't want to go back to work - I feel like I need to spend my days taking care of my kids - but I can't afford to quit!
Any suggestions would be greatly appreciated. I'm looking for another job at night right now - maybe that would free my days to take care of my kids - and save on day care. . . . . .
Thanks,
Anita
Sorry I was so long winded - it's been awhile!
I have to tell you - this trip - we used the phone number for Robert Soto's town car service from Houston Intercontinental Airport to the Hotel and from the Hospital back. It was WONDERFUL! WAY BETTER THAN A TAXI! I encourage ANYBODY who's going to Texas to use his service - his # is listed on Francine's web site under "Traveling to Texas". He picked us up at the airport - we got our bag and walked out the door to see a man holding a sign with our name on it - he took our bags and put us in a Lincoln Town Car and drove us to our Hotel all the while chatting and being VERY friendly. He then told us to give him a call the night before we wanted to leave and let him know where and what time - and so we did - and another driver picked us up at the hospital and took us back to the airport - same thing - nice friendly driver - helped us with our bags - and for THE SAME COST AS A TAXI!! $90.00 round trip - which is the same exact cost of a taxi!
The new renovations at the hospital were GREAT! Saved us a hotel room for 2 nights! The couch pulls out into a full size bed and isn't like a Serta - but it's comfortable enough! They supply you with as many pillows and blankets as you want - the thermostat controls only your room so you can keep it as warm or cool as you like - sooooo much room for your bags or anything else you bring. . .. private TV/VCR - so bring videos! AND YOUR OWN BATHROOM WITH YOUR OWN SHOWER! GREAT! Although the water pressure in our room wasn't too hot - the shower fit the purpose!
And as always - everyone is soooooo nice there! Cassidy just loved her nurse! Still talks about her now - says "my Nurse - Monica - she took care of me - and gave me medicine - and made me feel better!"
We've taken a break away from the board for awhile - just been really really busy! As some of you know I've been working 2 jobs - and of course the doc visits and therapy and you name it - plus, Darian (8 years old) has had some issues lately too! She was recently (about 4 months ago) diagnosed with Bi-Polar disorder (runs in our family - my father is also Bi-Polar) - her's is called "Early Onset Bi-Polar Disorder" and she is catagorzied as ultra-rapid cycling - which means she can go from very very hyper and happy to very very depressed and sad all in a couple hours (sometimes a couple minutes). So we're on our 3rd round of meds - and this time she's taking Depakote - which requires monitoring of her liver - so that means "Blood Work" - which for her is terrifying. So we went for our first blook test - at which time we found that her right arm does not extend all the way! (Some of you know - Darian was also hurt at birth - just not as badly as Cassidy - she had a broken collarbone - and a slight stretch - 4 months of PT and back to normal) - but it kills me that I never noticed that her arm doesn't extend fully! She's 8 years old - why didn't I notice that! Needless to say we went to the ped's office -she got her blood drawn - was upset and crying - so they had her lay down (which is when the nurse found that she can't extend her arm) and finally when the draw was over we were getting ready to leave - and the next thing I know Darian is face down in the doctors office having a seizure. Scared me to death! Soooo - the nurse had me help turn her over and the seizure passed - she went and got her Doctor who came in and checked her over, her blood pressure was a little low but that wasn't abnormal since she just had the seizure. . . he feels it was most likey just because she hand't eaten that morning yet and her blood sugar was low - coupled with the anxiety from the blood test...but just to be safe sent her for an EEG (which she had done on Thurs) and she is being referred to an orthopedist for her arm!
So now here we go - we have Cassidy and her Therapy appts and surgeries and treatments - now Darian will be added to the list (hopefully only therapy but we'll have to see what the orthopedist says) and Bi-Polar - blood work - and psychologists. . . . .
DOES IT EVER END?
I'm drained. I feel like I have NO time. I don't want to go back to work - I feel like I need to spend my days taking care of my kids - but I can't afford to quit!
Any suggestions would be greatly appreciated. I'm looking for another job at night right now - maybe that would free my days to take care of my kids - and save on day care. . . . . .
Thanks,
Anita
Sorry I was so long winded - it's been awhile!