United Brachial Plexus Network, Inc.

It has been a long while since I last posted. I have a dilemma that I am find a hard time dealing with. I recently have gone back to work (working 2 jobs) after being at home for 2 years with my daughter who has a right BPI. I have been through hell and hot water to make sure that she has had everything that she needs. When she was born and she suffered the injury, I vowed that I would be there to make sure that she made every therapy and doctor's appointment. Now that I have gone back to work, I feel as if I am not doing a good job because now I am not in the position to do the things I was able to do before. Her father is not doing a good job taking over my responsibilities at home when it comes to making sure that everything gets done like it should be. I didn't want to go back to work if she could not get what she needed, but I had no choice in the matter since I am the only person that is being totally responsible in this situation. Now I am faced with the fact that my daughter will need another surgery that I cannot afford to take the time off for and my husband is not responsible enough to take care of this. I have no family I can depend on when it comes to this matter because as far as they are concerned, what happened to my daughter is my problem, not theirs and I have to deal with it. Also, I am hearing rumors that TCH is having problems and I may need to find other alternative place to take my child to have the surgery done. I just needed to vent before I drive myself mad.

Have you thought of trying Shriner's in Philly? That might help with your finances. You don't need extra worries.
I'm sorry your husband isn't helping as much as he should, but you should be aware he might be suffering following the birth and having problems coming to terms with what has happened.
Someone who posts here said her husband had Post Traumatic Stress Disorder and lost his job as a firefighter as a reaction to her son's injury. I think women can be tougher than men sometimes. I know it's hard for you carrying all the responsibility and I feel for you, you are doing great and you should be proud of yourself. Keep on supporting your husband if you can, come here to vent, this too will pass.

Best wishes to you and your family.