where to go from here

Treatments, Rehabilitation, and Recovery
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Danzia
Posts: 74
Joined: Tue Oct 26, 2004 1:18 am

where to go from here

Post by Danzia »

i'm just having a really bad day and am looking for any suggestions.

i went to see dr maniker last week about why my condition is worsening. my pain management doc originally thought i either had a neuroma or scar tissue over my plexus where i had a thoracic outlet decompression. i've had more atrophy, clawing, pain, and lack of coordination in my hand in the last 6 months than in the almost 4 years since my accident.

i had an emg which showed that my nerves are completely normal up until my erb's point. though i'm still numb and clawed. the emg doc thought that maybe i had problems with my nerves at my c8 and t1 or rsd.

now dr maniker won't see me again and says he can't help me. where in god's name do i go from from here??? i have 3 weeks left on a disability leave from my job and they won't hold my job for me...
cbe411
Posts: 1393
Joined: Sun Jun 01, 2003 8:27 pm
Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
Location: Grosse Pointe Woods, MI
Contact:

Re: where to go from here

Post by cbe411 »

Danzia, not sure where you live but I would check into anotehr BPI guy straight away and see what they have to say. Some do phoen consults or even email consults. I would try that and see what other kinds of input you can get. i know that Dr. Nath is great with emails. Also maybe check the Mayo Clinic in MN, I hear wondeful things about htem as well. Whatever happends, keep your head high!! Dont settle for less than you deserve! Email me if you need to..

COurt xx
Danzia
Posts: 74
Joined: Tue Oct 26, 2004 1:18 am

Re: where to go from here

Post by Danzia »

court,
thank you so much for your advice. i do have an appointment with dr nath in december when he has a satellite clinic in jersey. that's just almost a month away and im so nervous about waiting. i finally was able to make an appointment with my pain management doc but not until next tuesday. i will probably email dr nath in the meantime.
thanks again, and thank goodness for this message board.
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