United Brachial Plexus Network, Inc.

I am Georgina, I have 4 kids:Elijah 10,Blaine 6, Avery 3, Emmett 7 months ROBPI

Hi everyone. My name is Christine and my husband is Vincent. We live in New Jersey. We are proud parents to three wonderful boys. Justin 8 (ROBPI), Madison 6 and Spencer 4. Justin has had Biceps Tendon Lengthening, Pec Release, Caps and Osteotomy. He is doing wonderfully. He had his procedures done at TCH with Dr. Nath. We are extremely pleased with his results. He is extremely high functioning and I am very proud to say he is a first degree blackbelt. You heard me right! He has been studying for five years after he aged out of therapy and it was the best thing we could have done for him mentally and physically. Happy Holidays to you all. God Bless!

Hi! I'm Crystal and I have two children, Sydney (2 1/2 yrs) and Logan (12 wks, ROBPI). We live in Nebraska and see an Orthopaedic Surgeon and an OT, but no BPI specialist so far. My son recovered biceps movement around 2 months, so for now we're doing ROM daily and following up with the doctor and OT monthly. I'd like to make sure I'm doing everything I can to help my son, so it's wonderful to hear from other people who have been through this. Happy Holidays to everyone!

Crystal

Hi! I am Heather. Mom to Hailey(5yr.), Savannah (3 yrs. old with ROBPI), and Trey (1 1/2). We live in North Georgia. Savannah weighed 11lbs. 3 oz. at birth and has had primary surgery and Mod Quad surgeries. Happy Holidays everyone!!!!

Hi, I´m Patricia mother to Franco (OBPI). He´s 12 years old and we live in Argentina. I´m so happy I could find you! I´ll be very grateful if you could send me information about places here in Argentina to deal with the injury. Difficult, no ? Thanks all the same.

Christina here, two month old daughter, Ambrosia, with robpi (is that how you say it?) I also have a two year old, Naliyah (pronounced Nuh-lee-yuh) and a wonderful husband, Robert.

Hi I am mom to Scott who has LOBPI he is 14 months old We live in Maryland
Thanks to all who share their story, it really helps to have support

Hi, I'm Terri, wife of Chris and mother of 2 daughters, Kearney (26 month, LOBPI..9lb13oz), and Quinn (12months c-section but 9lb 7oz 3Weeks early). Kearney is surgery free so far. Great recovery, but we're more focused on issues secondary to BPI right now (weak trunk, scoliosis etc).

Hi My name is Terri my husband is Bob. We live in northwest Indiana with our 5 children Bobby 13,Shelby 10, Becca jo 6, Sara 4 and Jamie 15 months --she was born weighing in at 10lbs 13.5 oz with lobpi and right broken clavical! She is surgery free and recovering very well.

Hi, my name is Tammy. My husband Michael and I have two sons, Brent who is 15, and Blake (ROBPI) who is 11. We live in Union City, TN.