Myotrac for use in BPI

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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F-Litz
Posts: 970
Joined: Fri May 26, 2006 6:53 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI, LTBPI at age 6.5, Sensory Issues, CP, Diaphragm Weakness, Aspberger's
Location: Ambler, PA

Re: Myotrac for use in BPI

Post by F-Litz »

You can tell them that he has to be plugged into his mother ship at night!

I love playin with people who gawk. Been there how many times with all Maia's surgeries...I love the shirt Maia has "I had surgery, what's your excuse?"
Mare
Posts: 708
Joined: Mon Mar 10, 2003 5:30 pm

Re: Myotrac for use in BPI

Post by Mare »

Frankies therapist managed to locate a biofeed back machine not the myotrac but she feels they all do the same thing we get to try it on Wed she didn't want us to waste our money if it doesn't work. Everyone keep there fingers crossed. Mare
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marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Myotrac for use in BPI

Post by marieke »

Fran, I want that t-shirt! LOL

I also need one that says, I'm paralyzed not 'deaf, dumb...' you name it!

I have one that says, I Drive my wheelchair better than you drive your car!

Marieke (31, LOBPI)
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
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hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Myotrac for use in BPI

Post by hope16_05 »

Good luck Mare!!! I hope it works awesome for Frankie!
What I learned this weekend is that the older myotrac is either more sensitive or I have gotten stronger from camp but either way I still have been feeling it all day and I only played with the myotrac for maybe 15 minutes but probably more like 10 minutes and wow! The bummer was I didnt get to bring it back to college with me because I dont know when I am home again and I can realy only loan the unit for a week at a time :( pouting over here, I really wanted to have it a couple weeks to play with it.

Now back to plan b getting a script from my dr on the 8th and getting one covered by insurance.

Anyway I hope it works awesome for Frankie!!!! Good luck!
Hugs,
Amy 20 years old ROBPI from MN
Amy 28 years old ROBPI from MN
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Myotrac for use in BPI

Post by Kath »

Yeah for Frankie.
Good Luck Mare
Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
katep
Posts: 1240
Joined: Mon Mar 29, 2004 3:20 pm

Re: Myotrac for use in BPI

Post by katep »

Yippee for Frankie, I hope he can discover lots of new muscles :)

Amy, each myotrac has a HUGE range of sensitivity. As it turns out, I was using the one at Camp on a very INsensitive setting (suits me right for not reading the manual and just assuming that "gain" always means the same thing... it was opposite of what I expected it to be!) So you can make the machine much more sensitive than I had it on at Camp, which would have helped tremendously in the "finding muscles" department!?! I'm amazed everyone did so incredibly well even with such a big hurdle to "find" their muscles! If used correctly, it really should be even easier...

Kate
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Myotrac for use in BPI

Post by marieke »

hehe.. yeah, I discovered that after reading the manual too... lol
Marieke (31, LOBPI)
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Myotrac for use in BPI

Post by hope16_05 »

this myotrac only had three sensitivity settings and the first one was way super easy and then the second one I could not even get out of the green.

It had a little different color scale too. Definitely an older version.

I could definitely tell I worked my muscles though and it was only about 10-15 minutes. Then they were sore for two days but I also had a cold so that probably didnt help.
Hugs,
Amy
Amy 28 years old ROBPI from MN
claudia
Posts: 1241
Joined: Tue Nov 06, 2001 12:21 pm

Re: Myotrac for use in BPI

Post by claudia »

So I guess now that we got our machine, you think I should read the manual, huh?!

And, in a house with a boy, you would think we would have batteries of all types...hmmmm, I guess Andrew used up all the 9v on his walkietalkies! Anyone need anything at the market??

I will be working with Juliana this afternoon. She is soooooo excited that "my machine" is here.

claudia
katep
Posts: 1240
Joined: Mon Mar 29, 2004 3:20 pm

Re: Myotrac for use in BPI

Post by katep »

Claudia,

I'm glad it finally arrived!! I can't wait to hear how it goes with Juliana! I hope it shows she has stayed in touch with her biceps this whole time, wouldn't that be fantastic!

Kate
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