SENSORY INTERGRATION DYSFUNCTION?

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
Locked
User avatar
brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: SENSORY INTERGRATION DYSFUNCTION?

Post by brandonsmom »

AMy don't feel bad, I always thought that I had just spoiled my son too much, then I heard from the adult BPI's.....My son will not wear a robe....he hates them. he would just rather run around in his underwear. He is seven now, so not so much around people, but if he could get away with never anything but underwear !Gayle
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: SENSORY INTERGRATION DYSFUNCTION?

Post by Kath »

Amy
It is hard for a child to explain what is going on because they don't fully understand what's going on.
My mother use to tell me I was like the Princess in the story "The Princess and the Pea".

It's not that your not sensitive.
I think it must be very hard to understand why these seemly trivial things can send us up a wall.
We don't really understand it when we are young and don't know how to fully verbalize it.

It gets better as we mature and learn to cope and compensate past some of this stuff.
I am sure it will be easier for both of you now that you know what is causing the problem.

I am married 40 years and my husband always thought my quirks were cute and funny... LOL..

He makes sure he sits to my right this way no one will startle me.
I still have to sit at a table with my back to a wall.
I can't stand anyone to come up behind me when I am eating...

Kath (robpi/adult)
Kath robpi/adult

Kathleen Mallozzi
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: SENSORY INTERGRATION DYSFUNCTION?

Post by admin »

Bumping to the top for parents asking questions about SID. This post is so amazing but keeps falling to the way bottom of the threads...just trying to keep it up at the top. Gayle
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: SENSORY INTERGRATION DYSFUNCTION?

Post by Carolyn J »

Gayle,
I think this should be permanently at the top also!Everyone mistakes SID forADD/ADHD because it's cheaper to treat...with a pill & there is nothing I detest more than "quick fixes"....
Hugs,
Carolyn J
Adult LOBPI
Carolyn J
Adult LOBPI
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: SENSORY INTERGRATION DYSFUNCTION?

Post by Carolyn J »

Gayle,
It's my turn to "bump this up" today...busy weekend...I hope some more Mom's read this, this week...
Hugs,
Carolyn J
Adult LOBPI
Carolyn J
Adult LOBPI
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: SENSORY INTERGRATION DYSFUNCTION?

Post by admin »

My son Jack is ten....he was always so confusing to me. He always has food and fiflth on his face and clothes in seconds after putting them on. He runs under desks or hides when I call his name(getting better with age). He'd struggle with his clothes sometimes hours and refuse to wear underwear, most socks, jeans, etc. He immediately undresses into loose fitting boxes when he gets home and as an infant only wore a diaper no matter what season. His bathroom rituals are strange. He spends a very long time and needs to be undressed when on the toilet in order to be comfortable. He has a very hard time going from one activity to another, making him perpetually late and always looses at least one thing during a transfer. He also can't enjoy spontaneous fun like other children...especially winter activities like sleigh riding that require several differnt layers. When he was very young I did not understand why it was so difficult and why my toddler screamed when dressing him, washing him, and the worst brushing his hair or clipping his nails but as he gets older I naturally made adaptions and he has improved. Going to a friends house, school, baseball practice, or a party now requires alot more prep time than conceivable for most people but it happens now and he is able to have a more full life. Down time is a major neccesity for Jack to function. Relaxing is something he needs to look forward to ant the end of his day and week. Although it is never easy, it gets easier....and you learn to pick your battles. I have never required him to wear underwear but now on his own he puts it on and he is wearing jeans now and not only sweats and tshirts. He even gets himself on the bus each morning and requires little help...an imposibility just last year. There is hope...and change...each day.
User avatar
brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: SENSORY INTERGRATION DYSFUNCTION?

Post by brandonsmom »

Bumping up to the top for the TEMPER TANTRUM question !! I think this one needs to be officially bumped....it is such a much needed thread !! Gayle
Amy Clark
Posts: 125
Joined: Wed Mar 29, 2006 4:14 pm

Re: SENSORY INTERGRATION DYSFUNCTION?

Post by Amy Clark »

Would someone be able to explain to me what Alexis's arm FEELS like? I often wonder, but she is not old enough to give me an explanation. She acts as if it hurts sometime when I touch it, but not all the time, so I'm careful not to grab her or pull (like when putting on a shirt). Does she have pain, pins and needles, no feeling? The doctor said his tests are inconclusive, but he doesn't have a BPI, so I think one of you can help more in that department (We love and trust her doctor very much - I'm not conmplaining about him!)
User avatar
brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: SENSORY INTERGRATION DYSFUNCTION?

Post by brandonsmom »

I am the mom of a child with a ROBPI but he is seven now and often complains of his arm falling asleep. PErhaps the Pins and Needles theory. I don't think that he has "REAL" pain yet and if he does, he doesn't know that "PAIN" is what it is !!!! He does say that his arm gets tired.....quite often....maybe an adult can help you more with this question ! Gayle
User avatar
brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: SENSORY INTERGRATION DYSFUNCTION?

Post by brandonsmom »

Bump !!!! Just for the purpose of keeping this important thread near the top....for other concerned parents to see. Gayle
Locked