United Brachial Plexus Network, Inc.

My son who is 3yrs. old is tbpi on his right arm, At this point it looks like c3 through T1 are torn out, I think there is some thread left as he has involuntary movement in three fingers, that is all the movement we have seen. He was with a babysitter and while he was in a crosswalk a truck hit him. He suffered numerous other injuries, was in a coma and had to learn to eat, walk, talk ect.. again. this happened in july 06, so it is exactly 6mo. today. He is on his way to the mayo clinic for surgery jan. 17th for tests and the 18th for surgery. TK

Sorry I missed the roll call before. I've been on here since late October when we found out that our 18-yr-old son's LTBPI from a cycling accident was very serious and would probably need surgery. We are in Calgary, Alberta, Canada. There's a very good BPI surgeon here, but our son has chosen the Mayo clinic because they have so much more experience.

Lurker reporting for duty!

Just collecting as much information on BPI as i can get.
Is surgery,worth pursuing?

Yes i'm a lurker,
but this may break the ice for me,, i had a motorcycle accident on 23rd August 2006,TBPI right shoulder,, i have seen a dramatic improvement in most of my arm hand and finger funtion, no muscle left in the shoulder,can't move my arm away from my body as yet, but i live in hope,, the pain is constant but i guess these are the breaks,, i feel a bit of a fraud with my injury when i read about some of you really brave up beat people with injuries such as mine but to a greater degree, god bless you one and all, and god speed your recovery,, Regards Gordon, (Scotland)

I found this forum today. 34, male, uk, rtbpi - m/cycle accident Nov last year. Messy. Handwriting almost legible now. Ambitions - Marathon 2008, ride a bike again.

Tina Ciccarelli, Staten Island New York

hi i was registered before , but forgot my name on here how silly......my old one i know was similar to this im gary 52 yr old male with bi lateral bpi doctor says its virule i just woke up like this one morning basically......i had some pain for a while, but thought it would go away and it only got worse
im from ypsilanti michigan USA looks like a lot of members are from england tho

Hi I'm Mare my son Frank is 14yr and has a lobpi always looking for info from older people and how they deal.

Hey Everyone,

Christi from Appleton, WI. Mt son is a 24 yr. old right arm tbpi. Glad to see there's so much support out there!


Stay in touch!
Christi

Hi Everyone I'm Mare my son Frankie is 14 and was born with a lbpi. I read everything I can hoping to be able to help him deal better as he gets older. Mare