United Brachial Plexus Network, Inc.

hi i'm angela, married to james 14 yrs, 3 sons, james (11.5), jacob lobpi (9.5), and sam (4). my husband is a diesel mechanic and i'm an ot working in nursing homes for 14 yrs. we live in san antonio, tx. jacob has had 2 surgeries at tch with dr. nath. modquad at 4 and caps at 7. we are trying to schedule anterior release in february with dr kozin. i recently went back to work full time after working only part time after having sam. it is a tough adjustment and jacob hates it the most but we are trying to help each other. i would like to say thanks to everyone for all the help i've received with my questions since finding this site last year when we got our first computer.

My name is Shannon Green I have two childre A son Alexpaul (7) and Alora (4) ROBPI. She has had three surgeries nerve graft (9 mos) mod quad (18 mos) and shoulder tightening (3 yrs). She has had pt/ot/aqua and hippo therapies but right now is only in ballet and soccer trying to have a taste of normalcy. My husband is a lawyer and I am a law student and we live in Southern Illinois.

I'm Jan Ames, married to Brian, we live in Round Rock, near Austin, Texas. Brian works for Dell, I'm currently a "stay at home Mom".

We have four children, (Brian's) Nathaniel age 15, (ours) Elizabeth age 7, Rachael age 5, Sarah age 16 mo ROBPI.

Sarah has had no surgeries yet, we will follow-up with TCH by video in December. We have recently added TES and a dyna-splint to her therapy. This board has been a wonderful resource! Thank you!

Hello I am Dylecia wife to Keiv and mother of three-
Keivion 8, Keiarra 4 LOBPI, and Kamauri 7weeks. Keiv is a Groundsman/Residential Tech. I am a stay at home mom.
Keiarra has had no surgeries to date but she is very outgoing and persistant to do things on her own.

Welcome All Newcomers!

Dylecia

I'm Kathleen, married to Craig for 6 years. We live in Abingdon, MD, with our 3 children: Abby (4), Joshua (2 and LOBPI), and Caleb (1). I am a stay-at-home mom hoping to homeschool.
Joshua has had nerve graft surgery and muscle transfer surgery in his shoulder, both done at Johns Hopkins Hospital. He is currently still improving since his shoulder surgery last January. We'll keep praying for more movement.

Hello
My 3 month old baby girl is Emily and we're from Alberta, Canada.
Emily is my second child (a long time between them-more than a decade!)
Emily is supposed to have surgery before Christmas...

Hi, I'm Anne, married to Joe, mom to Bobby 7 and Ben 3 (rbpi). We live in Ohio, near Toledo. Ben has had 3 surgeries, the first two primary and ModQuad at Texas Children's and this last one a free muscle (gracilis) transfer at Cincinnati Children's. He had ok return after the first two, but unfortunately his bicep never re-innervated, so we had to go with the transfer, which I am so glad we did, he's already showing elbow movement and can (with help) get his hand behind his head, first time ever!

Hello Kimberly
My name is Patricia Zertuche. You do not realize how excited I am right now to find some one local!! I am also living in SA and am desperate to find someone to talk to. God I can barely type. My daughter,Madelyne is 9 months and has only had one surgery. If you can contact me thru e-mail I would be very greatful.
patriciazetuche4@hotmail.com
Thank you Patty

Hi...I'm Heather, mom to Clara 16 months (ROBPI), and wife to Rob. We have lived in Nagoya, Japan for the last year and will probably be here for another year. I'm a stay at home mom and my husband is an engineering software consultant. (Prior to this we lived in Dallas, TX.) Clara did not need primary surgery, but TCH did recommend Mod Quad. We are planning on having this done when we return to the States permanently, as we know the therapy following this surgery is too intense for me to do alone. Although we have made the "pilgrimage" to TCH 3 times in the past year, we are considering visiting the brachial plexus clinic in Osaka to see what they have to say.

Thank you to everyone for all the great information on these boards. I don't know what I would do without you all!