United Brachial Plexus Network, Inc.

Moving this up

Moving this up

Interesting topic moving up to top.

Moving this up for those who are interested

Kath

This is always and interesting topic for those who are new to the message boards...
It sometimes helps to see how others relate to obpi pain.

Kath

How many have always had pain?
-I have

Did you ever tell your parents/family you were in pain or did you just accept it as your normal?
-No growing up I didn't discuss my arm at all

When you complained as a child were you told this injury is not painful?
-N/A

Did it occur during growth periods or just out of no where?
-I noticed the pain more as I grew older

Does the weather bother you?
-Yes

Do you have to take medication for pain and have you always had to take something?
-No

At what age do you think pain begins to be more noticeable?
14
How many of you were unaware that arm, neck and back problems were related to your arm and compensation?
-I was completely unaware

Did any of you realize that compensation and bpi may have caused other health problems?
-No not at all

How many thought it was only an arm and it did not affect the rest of your body.
-I did

Did you think that the unaffected arm was so physically strong nothing could change it ?
-Yes

How many have had really good follow up care from physicians ... sending you to PT and/or checking to see your arms are moving keeping track of your ROM?
-No any rehab felt useless.

If your answer to good follow up care is no

Can you state how the lack of interest in your arm impacted your physical health?
-I think I would have had better upper body strength and tried to workout but I didn't want to get to have really uneven arms.

Did you ever realize that no one spoke about your arm during physical exams?
-No everyone spoke about my arm, if anything they may talk to the nurse or my my and not talk to me.

Did you ever receive any instructions on how to care for yourself and prevent injury?
-No

Do you have poor circulation,lack feeling on some parts of your arm,face, hand, ear and neck
-my hand and fingers

Is your arm colder when you sleep?
-Yes
Do you wake up because your arm is cold?
-Yes
Do you often find your arm hand is freezing even when using it?
-Yes, all the time.

Thanks for your time,
Traci

move this one up

To the top for new folks

This is great...will you be preparing a summary report at all?

This post does not met the criteria for an actual long term study nor is it scientific, it is actually a very good resource for obpi adults. It is a way of sharing information that supports our own experiences with obpi.
Over the past few months many new obpi/adult have come to the message boards and have been able to compare notes via this post...

I think we would need more adult/obpi input before giving a good summary on this post.

KathM