United Brachial Plexus Network, Inc.

Hello,

I really hope you can help me with advice.

I'm from 'the other side of the fence' so to speak. Somebody very special to me is on Topomax. I could do with some help as to how to deal with the mood effects it has. I dont want a medication to end things between us but I'm scared it might go that way.

She doesnt talk to me about it, and i never know if she's up or down. One day i may be 'pressuring' her so i back off a bit, the next day i get told I'm ignoring her.

Could someone out there please help...

I do not want to give up on her

Which type of Vitamin did you take to off set the tingling and the coldness? I have been on Topomax for a few months now with great seccuss.

I have been researching Topomax for a long time and one thing that has stuck out was hair loss. I have lost 50-60 lbs. but I am getting off of it just for the fact that right now I have fairly thick hair and I refuse to loose it. No amount of weight loss is worth that. Just thought you would be interested in the research.
janet

I have been taking topomax for about 2 years for bi-polar diaorder in addition to zoloft and it is a miracle drug as far as I am concerned. It sounds like you have something else going on.I Wouldn"t be too quick to blame all these symtoms on the topomax. Topomax really has very few side affects and I personally, think that from reading all these complaints from so many people that it might be a cope out and they just aren't giving the drug a chance.I take 350mg daily for headaches, bi-polar disorder and gran-mar seizures and it has given me my life back. The only real side affect should be fatigue temporary memory problems in the beginning which goes away. I only know I am not willing to risk my life by taking lithium for my bi-polar when there is another drug available.Once your liver starts to fail you are in real trouble. I also went off Topomax at one time and believe me, it is not addictive. I don't know where this information came from but it is certainly not true. Good luck.

Nanc

Mike, I am an alcoholic and after 7 rehabs 6 detoxes homelessness and hopelessness I have found freedom and happiness in A.A. I hope to hear from you. I am also a counselor in private practice for many years and beg you to keep trying, never give up, keep trying, never ever ever give up.

Michael

I'm glad to find this forum. I've been trying for 18 months to figure out what has been causing all my hair/scalp problems and I'm nearly certain now it is the Topamax. I've lost a lot of hair and had major scalp problems. It's humiliating. I used to have a beautiful head of hair. Topamax has helped me a lot though.

HI THERE, THE REASON YOU ARE NOT LOSING WEIGHT AS FAST AS SOME IS BECAUSE OF THE HIGH DOSAGE OF SEROQUEL, SEROQUELS SIDE EFFECT IS WEIGHT GAIN. I ONLY TAKE SEROQUEL IF I ABSOLUTLY HAVE TO. I TOO AM BI POLAR AND A RAPID CYCLER. I ONLY TAKE TOPAMAX 400 MG, I HAVE LOST 42 LBS. I WATCH MYSELF VERY CAREFULLY WITH THE SEROQUEL AND EVERYTIME I TAKE IT I SEE AN APPETITE INCREASE. SUZANNE

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started topomax this spring after trying everything for migraines/right side debilitating nerve pain with stabbing pain. it has been going on for years. i even had major neck disc sugery last surgery and it didn't help. started the topomax - it took three weeks to start working and was difficult at first. still had alot of migraines. now i have almost no nerve pain- which was constant- and one or two migraines a month- not three a week! it has really chaged my life! i am a little tired and maybe a litle slow but it is ok by me! stick with it for a least a month if you try it! it works better than the strongest pain medecines available and is alot better for me!

Hi..I know it has been a few years since you posted this statement but I am wondering about the hairloss too. I have been having a very large amount of hair hairloss that is really scaring me!!! I'm not sure what is causing it. I am going in for some test on Tues. (that is if this hurricane Wilma doesnt ruin everything...I live in Brevard county) I have images of being completely bald. I feel I have lost about 45% of my hair. It just falls out whenever my hair is touched. When I wash my hair thats when the most comes out. I dread having to do that. Please e-mail me back and let me know what you found out. Thanks so much!!!