United Brachial Plexus Network, Inc.

Any TBPI had mod quad, other than nancy? i was just looking for more information. thans a bunch!!!
~Courtney xoxo

Hi Beata how are you? Did you find the board? Mary

Reply

Any TBPI had mod quad, other than nancy? Whats a mod quad? Mary

Mod quad is a secondary surgery which contains several elements. It was developed for obpi children injured at birth. Many other centres do some individual elements of the surgery rather than all at once, depending on the needs of the patient. As far as I know no tbpi has had the mod quad, that may be because the centre that developed it does not specialise in tbpi, we tend to have different issues from birth injured people, but of course I may be wrong- any tbpi who has had MQ please tell us about it! Many tbpi do have secondary surgery of various kinds, what people have depends largely on their own injury, we are all so different that I don't think anyone will ever develop a 'one size fits all' secondary surgery for tbpi.
Hope that helps!

Thanks Jenny...........................Bob

Hi. I have a friend who is going to need nerve grafting for his brachial plexus. his nerves were severed and several may be avulsed (doing a test today). he is going to have the nerve grafting surgery but wants to find the best doctor possible. Can anyone recommend surgeons? We are in New York City, but would travel if necessary. Also, he has spoken to Dr. jess Ting at Mt. Sinai...does anyone know him at all? Thanks for any help you can provide.

Marcy,
The only doctors that I can recommend are my own, but check out the resource directory on the website here and there are many different doctors there, all over the states. Dr. Wolff in Lousiville,KY did my nerve graph and Dr. Nath in Houston, TX did my nerve transfer. Hope this was of some help!
Feel free to email me if you need to, courtney@ubpn.org

Courtney

Hi Courtney, nice to see you posting. I didn't know you'd had a nerve graft already as well as the surgery you just had, when was that done?
Marcy, the directory Courtney refers to is on the home page, click on the 'medical resources' button. Unless you were injured at birth, it's important to try and find a specialist whose main interest is adult onset bpi. I know I keep on about this but it's really important-there is no way any of the parents would take their birth injured child to a trauma specialist, it follows that adults should see someone whose experience in trauma bpi is very wide-with at least 60 different kinds of lesions in tbpi, only someone very experienced is likely to have seen and operated on even some of them. The protocols, post surgical follow ups and therapy are all very different in adults, make sure whoever you choose has adults as their main interest, NOT a sideline.
Let us know how you get on :0)

Hi every one my name is Todd and i'm going to have the gracilis muscle transfer done on the 29 of october.It has been 1 year and a half since my accident and not one surgury yet.I will let every one kown how it goes.every one take care.
HOPE EVERY THING GOES GOOD COURTNEY
TODD XOXO

Someone wrote that if you go to "resources" that there is lists of doctors, I did that and it said its coming soon??? Where are the list of doctors you are talking about?