United Brachial Plexus Network, Inc.

Sorry guest poster

I think what happened due to holidays was that some of your posts did not appear quickly enough... When you post as guest it has to be read and approved before it appears on the message board and there was some sort of a delay with your posts telling everyone you were a parent...

Please feel free to e-mail me at any time

Kath

Hi Kathleen,

I had no idea that there even was such a program. That is GREAT!!! How many people are involved and actively working on the In Touch Program?

Of the 4 main objectives you mentioned, is there a particular priority or are all 4 being addressed somewhat simultaneously? In Touch sure won't be running out of work any time soon. Soooo much to do.

If there is something I could do please feel free to email me and we could chat. Thanks again for all you are doing. None of us could thank you enough. Keep us posted.

Elisa

I just joined the board of directors in September...

Kathleen Kennedy and Nancy and Francine and others worked the portion of this program that---- Created and maintain a Professional Online Registry. Registry listings include Medical, Therapy, Legal and Other;
And really have done an awesome job... I really did not do anything on this part of of the program.

Right now I am the one researching and trying to get the CDC to count us... I stumbled on to the fact that we are not officially counted and have been focusing on this issue as a first step....

I would love some help ... from those interested in reaching out to the community and am open to any and all suggestions...
Please e-mail me at KathM@ubpn.org

I am sorry you have been offended and pain, emotional or physical, affects people in many ways. Distrust is sort of a theme as you may yourself understand. I myself feel as though we were lied to when our son was born with Erbs Palsy. In the day and age of so much technology how can this continue to happen...

Please take it with a grain of salt. This is a good site but we are human and sometimes we too make mistakes. It is hard to judge ones character by words alone.