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Re: Coping with Palsy as a teen

Posted: Wed Mar 23, 2011 4:41 pm
by Kath
Miss Elizabeth,
I can't believe that you are posting on the boards. Your Mother has prepared you to take on the challenges we face as OBPI. You know how your injury happened, what was done to gain motions and how to speak up, when you have to.
Welcome to the message boards. You were such a little one when I met your Mom here at UBPN. She has always been a blessing to these Message Board.

Louise,
You are a great Mom! I was lucky enough to have a Mom who prepared me to cope with the world and that was the biggest blessing the Lord gave me. Miss Elizabeth is blessed to have you as a Mom.

Kath robpi/adult

Re: Coping with Palsy as a teen

Posted: Wed Mar 23, 2011 5:07 pm
by jmar
kath and elizabeth, the two of you have no idea how lucky you really are. i came from extremely abusive parents. i pretty much raised myself. but i know i am o.k. just like to hear people had good parents. dont forget to tell your parents how valuable they are.

Re: Coping with Palsy as a teen

Posted: Thu Mar 24, 2011 3:46 pm
by sarah90
I am 20 and have Erb's Palsy, it'd be great to talk to someone! PM me if you want to talk :)

Re: Coping with Palsy as a teen

Posted: Fri Mar 25, 2011 7:55 pm
by Becka
Some time this year I'm having surgery in two places on my left arm. My bone and socket. I hope it goes well... :?

Re: Coping with Palsy as a teen

Posted: Tue Mar 29, 2011 5:58 am
by emilyalberger
hello im emily and i got lobpi im 21 yrs old now and how does everyone deal with the pain? ive used tylenol but it doesnt work

Re: Coping with Palsy as a teen

Posted: Tue Mar 29, 2011 12:37 pm
by Jennifer P
I use a foam roller and a tennis ball. I find that most of my pain comes from my muscles being tense. Using the foam roller helps to loosen the muscles up.

The tennis ball is a more intense version of the foam roller, I get most of my pain/tension under my scapula (shoulder blade). I put the tennis ball just under the bottom of my scapula and lay on it. It feels akin to getting a deep tissue massage (aka painful) but afterwards my arm feels so loose and awesome and it lasts for a few days.

Re: Coping with Palsy as a teen

Posted: Fri Apr 08, 2011 9:35 pm
by Becka
Do any of you guys use a towel on Ur back to help posture? :?:

Re: Coping with Palsy as a teen

Posted: Fri Apr 08, 2011 9:47 pm
by emilyalberger
a towel? i never would of thought of it....u put it on your lower back right?

Re: Coping with Palsy as a teen

Posted: Sun Apr 10, 2011 10:48 am
by Becka
Yeah but i just go a noodle ( the swimming kind) so that may work