Coping with Palsy as a teen

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Coping with Palsy as a teen

Post by Kath »

Miss Elizabeth,
I can't believe that you are posting on the boards. Your Mother has prepared you to take on the challenges we face as OBPI. You know how your injury happened, what was done to gain motions and how to speak up, when you have to.
Welcome to the message boards. You were such a little one when I met your Mom here at UBPN. She has always been a blessing to these Message Board.

Louise,
You are a great Mom! I was lucky enough to have a Mom who prepared me to cope with the world and that was the biggest blessing the Lord gave me. Miss Elizabeth is blessed to have you as a Mom.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: Coping with Palsy as a teen

Post by jmar »

kath and elizabeth, the two of you have no idea how lucky you really are. i came from extremely abusive parents. i pretty much raised myself. but i know i am o.k. just like to hear people had good parents. dont forget to tell your parents how valuable they are.
sarah90
Posts: 1
Joined: Thu Mar 24, 2011 3:34 pm

Re: Coping with Palsy as a teen

Post by sarah90 »

I am 20 and have Erb's Palsy, it'd be great to talk to someone! PM me if you want to talk :)
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Becka
Posts: 21
Joined: Tue Mar 01, 2011 8:56 am
Injury Description, Date, extent, surgical intervention etc: I was born with bpi, I am now 13 and have had two surgeries for my injuries. My mother found this website 13 years ago and I attended the second camp (not that I remember, I was only two) Now it is time to me to handle my injury instead of my mother.

Re: Coping with Palsy as a teen

Post by Becka »

Some time this year I'm having surgery in two places on my left arm. My bone and socket. I hope it goes well... :?
emilyalberger
Posts: 51
Joined: Tue Mar 29, 2011 5:53 am
Injury Description, Date, extent, surgical intervention etc: left arm bpi since birth,can only bend my elbow mostly ne feeling n when i get it its not the right sensation

Re: Coping with Palsy as a teen

Post by emilyalberger »

hello im emily and i got lobpi im 21 yrs old now and how does everyone deal with the pain? ive used tylenol but it doesnt work
Jennifer P
Posts: 220
Joined: Wed Sep 09, 2009 7:12 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
Location: Pacific Northwest

Re: Coping with Palsy as a teen

Post by Jennifer P »

I use a foam roller and a tennis ball. I find that most of my pain comes from my muscles being tense. Using the foam roller helps to loosen the muscles up.

The tennis ball is a more intense version of the foam roller, I get most of my pain/tension under my scapula (shoulder blade). I put the tennis ball just under the bottom of my scapula and lay on it. It feels akin to getting a deep tissue massage (aka painful) but afterwards my arm feels so loose and awesome and it lasts for a few days.
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Becka
Posts: 21
Joined: Tue Mar 01, 2011 8:56 am
Injury Description, Date, extent, surgical intervention etc: I was born with bpi, I am now 13 and have had two surgeries for my injuries. My mother found this website 13 years ago and I attended the second camp (not that I remember, I was only two) Now it is time to me to handle my injury instead of my mother.

Re: Coping with Palsy as a teen

Post by Becka »

Do any of you guys use a towel on Ur back to help posture? :?:
emilyalberger
Posts: 51
Joined: Tue Mar 29, 2011 5:53 am
Injury Description, Date, extent, surgical intervention etc: left arm bpi since birth,can only bend my elbow mostly ne feeling n when i get it its not the right sensation

Re: Coping with Palsy as a teen

Post by emilyalberger »

a towel? i never would of thought of it....u put it on your lower back right?
User avatar
Becka
Posts: 21
Joined: Tue Mar 01, 2011 8:56 am
Injury Description, Date, extent, surgical intervention etc: I was born with bpi, I am now 13 and have had two surgeries for my injuries. My mother found this website 13 years ago and I attended the second camp (not that I remember, I was only two) Now it is time to me to handle my injury instead of my mother.

Re: Coping with Palsy as a teen

Post by Becka »

Yeah but i just go a noodle ( the swimming kind) so that may work
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