United Brachial Plexus Network, Inc.

Javier has recently started to hate being washed. He used to love it. I still use the really soft washcloths for babies on him. I have noticed that the more feeling he gains in his injured arm, the more he hates to be touched. Should I just continue to rub and tap him ( he still likes it)? Should I try a rougher washcloth? Any other suggestions?

Marlyn

Who is the specislist for SID? Where & who is the best to diginose this now or other ot is saying that j has no or mild SID. I got the book "The Out Of synic Child" plan to read soon. Very confused!

Marlyn:
YES!! Keep touching and rubbing all different fabrics on his arm (and all over). You can make puppets out of them or a fabric cube. Ask your ot (when you get one-I know you just moved) to give you a surgical brush so you can "brush" him. Keep stimulating his arm, it will do wonders. Oh and temperature might be the issue with the bath. Juliana doesn't feel the temperature of the water correctly. If it is hot, it feels cold and when it is cold it is "weird" (a juliana quote) or sometimes it feels like it is burning.

As for who tests for SID, our ot was trained and did the testing. You can ask a neuropsych, if you are going for that testing, if he/she does SID testing. Or, ask your ot to put you in touch with someone who is SID trained.

good luck, and when you read the book, it will help a lot.

claudia

Bumping to the top for another post.....hope this all helps. I found it very interesting, although I did not start the post, everything that was said was so true for my son....good luck again !GAYLE

Hello All,
Please keep this Topic bumped up because it anwsers sooo many questions about Behavior & SID & BPI. I am still re-reading and learning new things("AHA/Lite Bulb Momments") every time I re-read this Topic....I love you all...
Hugs all around,
Carolyn J
Adult LOBPI

Okay, I think we can do that.....Gayle

I wanted just wanted to suggest these 2 books: http://www.out-of-sync-child.com/

My oldest son has SID (he is my preemie) and these books are great.

It has been suggested to me that the SI may be the result of his traumatic entrance to the world (7 weeks early 3.5 lbs) and subsequent time in the NICU (7 weeks, on vent, PDA, BPD, etc - all the things that go along with being a preemie), etc. So, it would make sense that it could easily be connected with BPIs also.

Can someone help? What are the initial signs of SI? Are they present from the beginning, or can they start at any stage of life?

Initial signs for us was "freaking out" over what I would consider silly things (all environmental) and not being flexible at all concerning those things (major power plays). It was VERY difficult to deal with until I understood what it was. I'm sure that the answers you get will be different for individual children because this manifests in so many different ways.

I don't really understand what you are saying, could you give me example?