Really cool site

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Really cool site

Post by Kath »

Years ago, someone started a post and I think Ohio and Michigan had a large number of OBPI. I don't know the stats on TBPI.

Interesting...

If you look at the statistics for Oregon in the last Outreach they were the highest per 1000 births.

Kath robpi/adult

Kathleen Mallozzi
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Really cool site

Post by admin »

this is really neat and helps alot
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Really cool site

Post by admin »

This thread was accidentally deleted.
PeggyF
Posts: 671
Joined: Sat Nov 10, 2001 10:14 am

Re: Really cool site

Post by PeggyF »

Thanks, admin!

admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Really cool site

Post by admin »

bump for the newbies
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Really cool site

Post by admin »

Sign up if you havent and check it out
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Really cool site

Post by admin »

I also think that the appearance of a concentration of BPI events in the Northeast is very interesting as well. I wonder how many of these families relocated to the Northeast because of its greater availability of services? I think that many of us would be interested to learn where in the BPI is most likely to occur. So I would like to make the suggestion that people when contributing to the site identify not their current residence, but where the injury occured. For example, I currently live in a very rural area, but the injury occured in a very urban area...

Otherwise forgive my suggestion if I offend anyone, I am a statistician. If we post from our current residence, then this site is valueable for its social and support purposes, but if we post the location of the injury this sites serves prehaps a greater epidemiological purpose in identifying the source, hence possibly reducing the incidence, of BPI injuries.

Math BPI Mom
User avatar
richinma2005
Posts: 861
Joined: Thu Sep 29, 2005 12:00 pm
Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.

Re: Really cool site

Post by richinma2005 »

Of course, you could have a second map for that purpose
User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Really cool site

Post by hope16_05 »

I think a second map for that purpoce would be neat. I know I posted where I currently live which is about 3 hours from where my injury occured.
Amy 18 ROBPI from MN
Amy 28 years old ROBPI from MN
User avatar
brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: Really cool site

Post by brandonsmom »

You know I was thinking about the same thing. WE lived in California, the injury occured in California but now we live in Illinois. It would be cool to do a map that shows where the injuries are occuring. I am too computer illiterate to try something like this, but think it would be great to see where these injuries are happening !!!
Gayle mom of Brandon 7 ROBPI ILLINOIS
Locked