Kath - we too just always call it the 'left arm'. If Brittney says her arm got hurt or she fell and hurt herself or whatever - I always ask which arm she hurt and if she says "left" and I know it is her injured arm. She was the only one year old around who knew her left from her right in play groups - she used to get so bossy at playgroups demanding that all of the other kids give BOTH arms a turn at playing. She was a vocal little thing and always just called her arm "the left arm".
Christy
Let's see how silly we really can be
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Let's see how silly we really can be
I always called mine "the bad arm", (LOBPI), and I also now have a name for my left leg (since I was paralyzed by a virus last year, not related to the Erb's, just bad luck!) I called it "dead wood" because it wouldn't move and my friend nicknamed it"woodsey". To this day they still call it that, even though it now has some movement. I think it's funny and it lightens the mood.
Marieke
Marieke
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JamieMarie'smommie
- Posts: 178
- Joined: Thu Apr 14, 2005 11:21 am
Re: Let's see how silly we really can be
my cousin's two year old calls my 3 month old daughter's right arm Baby Bop because my daughter seems to bop herself in the face with that arm whenever she tries to use it.
Darn Barney.
Darn Barney.
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Let's see how silly we really can be
Hi all. This is my first time posting but I have been reading all night. I couldn't help but respond to the name thing. I refer to my arm as "the bad arm" when I'm serious and "Gimpy" when I'm joking around. It's funny. I've been reading these posts all night (I work nights) and the similarities with BPI people are so much alike. I've always felt like the odd person or different because of my arm. It's nice to know there are others out there like me and I'm not so different after all.
Venencia, 45 LOBPI
Venencia, 45 LOBPI
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Let's see how silly we really can be
Welcome Venencia,
What a beautiful name...yeah,we adults have a very dark sense of humor, but feel free to join right in!Where are you from? It's such a small world tho here on UBPN.....there are also no dumb questions either,we love to share our experiences,it really helped me alot to share suff here....
Be sure not to overloadf to mmuch at once tho;I ghad to set my stove timer,because I was losing 3-4 hrs. when I found this site in April of 2004.
Hugs,
Carolyn J
LOBPI,age 67
What a beautiful name...yeah,we adults have a very dark sense of humor, but feel free to join right in!Where are you from? It's such a small world tho here on UBPN.....there are also no dumb questions either,we love to share our experiences,it really helped me alot to share suff here....
Be sure not to overloadf to mmuch at once tho;I ghad to set my stove timer,because I was losing 3-4 hrs. when I found this site in April of 2004.
Hugs,
Carolyn J
LOBPI,age 67
Carolyn J
Adult LOBPI
Adult LOBPI
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Judy-T
- Posts: 557
- Joined: Fri Nov 02, 2001 11:59 am
- Injury Description, Date, extent, surgical intervention etc: Right arm OBPI One surgery at age 40 Ulnar nerve retransposition
- Location: Florida
Re: Let's see how silly we really can be
I decided to post under this topic. I substitute teach and was asked to teach P.E.this Wednesday.So , here I go again with one arm jumping jacks.
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Let's see how silly we really can be
Judy
Are you going to teach us all how to do them at camp?
Will I still get an A from you even if I bend my arm and clap a bit it front....
I found out something great a pronated hand obpi can do..
My granddaughter taught me how to clap like a seal this past weekend... The two four year old granddaughters think I am great at it... LOL... unlike my Patty Cake.
Kath
Are you going to teach us all how to do them at camp?
Will I still get an A from you even if I bend my arm and clap a bit it front....
I found out something great a pronated hand obpi can do..
My granddaughter taught me how to clap like a seal this past weekend... The two four year old granddaughters think I am great at it... LOL... unlike my Patty Cake.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Let's see how silly we really can be
Yes Judy, let's all do jumping jacks with you leading the pack of us!!
Hugs,all around ~~30 days & counting!
Carolyn
Hugs,all around ~~30 days & counting!
Carolyn
Carolyn J
Adult LOBPI
Adult LOBPI
Re: Let's see how silly we really can be
Well you know how we worked out the canoeing last time, with a righty and a lefty, so I can see us doing jumping jacks the same way. We can pair off. Can you picture it?
Nancy
Nancy
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Whitney28791
- Posts: 6
- Joined: Sat Jul 23, 2005 8:15 pm
Re: Let's see how silly we really can be
I got some laughs out of this topic........I actually call it "My Crippled Arm".......I always tell my girlfriend that I am just a "Crippled Child"...But as the original post said it is all in fun.....