Topamax Side effects!!!

Treatments, Rehabilitation, and Recovery
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Shanda
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Joined: Mon Jun 07, 2004 4:05 pm

Re: Topamax Side effects!!!

Post by Shanda »

I am on my fifth week of topamax and am up to 100 mg a day for migraines. The fog has finally lifted! I was about to tell my doctor I couldn't handle any more but am finally over the bad side effects. I'm not sure the migraines are helped much yet but am willing to hang in there to give it a try. I was very disoriented, lethargic, slow thinking, slurred speech at times but am feeling better now. I'm sure if my doctor raises the dose again I will feel bad again but know it will probably pass. I just hope it will help the migraines. It it does, the side effects are worth it to me. Although 100mg is so little compared to what so many of you take, I could change my mind. But for those of you just starting out, don't give up too soon!
admin
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Joined: Mon Nov 16, 2009 9:59 pm

Re: Topamax Side effects!!!

Post by admin »

I have noticed after only 5 days at 25 mg per night that my vision is really blurry and just "weird" when I wear my glasses- oddly not when I wear my contacts.
Do you remember when you began to notice the first blurriness?
admin
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Re: HorridTopamax Side effects!!!

Post by admin »

Just a quick note to you all.. After stopping taking the topamax, (well over a month later) my taste/smell came back, and finally my dang back spasms stopped.. (Yay) Down with Topamax :I
admin
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Re: Topamax Side effects!!!

Post by admin »

I started taking Topomax for hip/leg pain as my doctor said it would help. I am also mildly ADD so he said that would be a plus that it would make me more focused as well as I would probably lose a few pounds. Well, it did NOT make me more focused. I started out on 25 mg, increased to 50 mg and then 75 mg. At 25 mg I saw no problems, at 50 mg I started to see some mild memory loss at 75 mg I became a total agitated mindless idiot. At first, I thought I was just under a lot of stress. Finally, my husband said that he thought there was a problem because I couldn't remember anything or function and I have always been a very high energy, multi-tasking person. The icing on the cake was when I wanted to check my phone messages and looked at the phone and couldn't remember my own phone number to call and get them and then tried to fill out some forms and couldn't remember my house number. Needless to say, I am no longer taking this drug. I can live with the pain more than I can live with the memory loss and feeling of being in another world. Even my friends noticed that I wasn't the same person. They and my hubby are glad to have me back. NEVER again would I take this drug.
admin
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Re: Very Scary Issue for Me

Post by admin »

Monica,
When I was on 25 mg once per day, I was just fine and then when they switched me to three times per day, I turned into a agitated monster that couldn't remember my name. I am no longer taking this drug!!!!
admin
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Re: Topamax Side effects!!!

Post by admin »

I have epilepsy and take 900 mg a day of topamax. My brain is cloudy, I have pour judgement I can't always think straight, I forget think straight, I hae a rash, i itch, I stumble, I can't eat half the time, and I just plain don't feel good bdcause of the topamax. The only nice thing is that I've lost over 50 pounds in the last 6 months.
admin
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Joined: Mon Nov 16, 2009 9:59 pm

Re: Topamax Side effects!!!

Post by admin »

I have epilepsy and take 900 mg a day of topamax. My brain is cloudy, I have pour judgement I can't always think straight, I forget think straight, I hae a rash, i itch, I stumble, I can't eat half the time, and I just plain don't feel good bdcause of the topamax. The only nice thing is that I've lost over 50 pounds in the last 6 months.
admin
Site Admin
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Joined: Mon Nov 16, 2009 9:59 pm

Re: Topamax Side effects!!!

Post by admin »

I lost the feeling in my left side about a month ago
the Dr's sent me for a MRI and dignosis MS. I've been doing some research of my own since then and the symptoms should disappear in a months time from the time you discontinued using the medicine from what the world health organizations alert states.
admin
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Re: Topamax Side effects!!!

Post by admin »

I am taking 100 mg. topomax 2x a day for epilepsy and the tingling is making me crazy. I feel it in my hands and feet and even in my face today during an important meeting to the point of distraction. I started it 8 weeks ago as a substitute for dilantin which was failing me. I am desperate to find a drug I can live with but the tingling is making me crazy. How long did it take before the tingling went away?
Georganne
Posts: 1
Joined: Tue Jun 22, 2004 8:32 am

Re: Topamax Side effects!!!

Post by Georganne »

I started Topomax 8 weeks ago for epilepsy. The dose has increased to 200 mg. a day. My hands tingle, burn and yet feel numb when I use them do anything that puts much pressure on them like grasping clippers or massaging my husband's neck. The tingling will stop 30 minutes or so later. My foot is tingling now because I've crossed my other leg over it. Yesterday the tingling was in my face to the point of distraction. Do these feelings ever go away?
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