United Brachial Plexus Network, Inc.

Susie Kaye,
I'm sorry you feel saddened reading this board. I do know what you mean about envying others with more movement. Just remember there is always someone worse off. I have C5, C6, C7, C8 & T1 all avulsed on my left side and my right arm and shoulder torn off. I have the phantom pain on one side to deal with and the crippling neropathic pain on the other. I'm not sure what God's plan is for me, but he didn't want me competing on my deloved horses any more!

I am going thru the amputation process and altho I have biceps and can use my upper arm to hold things against my body (so could use a prosthetic) I don't think I would-I have lived perfectly well with one arm for more than half my life, frankly I wonder what people do with all those arms! :0)
Apparently a huge percentage of amputees don't use prosthetics even if they can-I read that it was in the 90's.
I'm just glad to be alive on this bright early spring day in NZ.....take care all.

Jenny
Thanks for writing, I,m sorry it took so long to get back to you. Please keep me up to speed on your surgury-it takes a lot of guts to make that decision but anyone who has been playing this game for long gets used to those, unfortunately. I am very tired of this babysitting job though and have long since given up any hope of ever getting any use out of the dangling limb, but I am quite worried about increasing my pain level as sometimes it almost seems manageable, to loose this little fantasy would be extremely disheartening. I await your outcome with baited breath as I am, likely, not far behind.
Thanks for all the great work you do on this site, your like the great den-mother of tbpi. Strength
Onepaw