United Brachial Plexus Network, Inc.

DEAR,DEAR SUSAN!!!!

PLEASE----DON'T GIVE UP----YOU HAVE COME SO FAR, AND I KNOW YOU HURT IMMENSLY, PHYSICALLY AND ALSO SPIRITUALLY--YOU NEED TO KEEP GOING, GET SOMEONE TO TALK TO ABOUT ALL OF THIS--PLEASE!!!!!!!!! YOU HAVE BEEN SO MUCH HELP TO SO MANY PEOPLE ON THIS BOARD--CAN'T YOU SEE THAT, WITH 2 PAGES OF REPONSES AND ENCOURAGEMENT AND CONCERN THAT YOU HAVE GOTTEN AFTER YOUR POST?? WE ALL LOVE YOU, I KNOW YOUR FOLKS LOVE YOU, AND I'M SURE YOUR TRUE FRIENDS LOVE YOU TOO, AND ALL OF THEM/US WOULD DO ANYTHING TO HELP YOU GET THRU THIS---JUST DON'T DO ANYTHING RASH--IT WOULD DEVESTATE EVERYONE THAT KNOWS AND LOVES YOU--REMEMBER, YOU ARE STILL YOU, AND THE SPIRITUAL YOU IS THE ONE EVERYONE LOVES AND CARES ABOUT--IT DOESN'T MATTER WHAT YOU LOOK LIKE, WHAT YOU CAN OR CAN'T DO, OR WHAT YOU ARE GOING THRU--PEOPLE ARE THERE TO HELP YOU--JUST ASK--PLEASE!!!! REGARDING YOUR PHYSICAL PAIN, I KNOW HOPKINS HAS PAIN CLINIC, I'M SURE THERE ARE PAIN CLINICS AND SPECIALISTS DOWN YOUR WAY--CALL YOUR LOCAL HOSPICE IF ALL ELSE FAILS--THEY SHOULD BE EXPERTS IN PAIN MANAGEMENT, AND COULD STEER YOU TOWARD SOMEBODY TO HELP YOU RELIEVE THIS PAIN.. REMEBER WE ARE ALL HERE--AND HOPEFULLY HELP RELIEVE THE EMOTIONAL PAIN YOU ARE GOING THRU--------WE LOVE YOU!!!!

> LOVE SUZIE

Susan

Sorry to hear how low you are. If its any consolation this is the worse thing that has happened to me too and the first time in my life that I just don't want to get out of bed in the morning. I know I am just a wuss and can't compare myself with you as to your pain. I hate my chicken emaciated shoulders that don't work that I spend my days rotating as the muscles in the shoulder and back are stuck together like velcro. I am thinking too is this it, no job, WHAT to look forward to. Instead of looking at 30 years why don't you give yourself 2 years and review it from there. The pain is meant to subside after about then from what I have read in these threads. So just see if you still feel the same way. I know I can't stay this depressed forever. (I think).

Sorry Susan, I called you Sue in the post above.

There's 1 thing I want to say again that I hope applies to you:

YOUR TERRIBLE PAIN MIGHT ONLY BE TEMPORARY! THIS HAS BEEN THE CASE FOR MANY PEEPS ON THESE BOARDS.

Ciao Susan, and take care.

Punchy Sue,

Are you there???? We miss you. We're here for you & guess what... you don't have to be anything but yourself on this board. Let us continue to be "there" for you, however you need us.

Take care,

Ellen

I've debated whether to write or not, but I have decided not to write would be wrong. I don't want to minimize the pain you are in, both physically and emotionally. I too have a TBPI and yes the pain, inconvenience, aggrevation, etc. is TERRIBLE. I considered suicide as well at first. The one thing that kept me from going through with it, is my father succeeded in taking his own life, and it had nothing to do with BPI. My father thought he was doing us a favor, if he left us, we would not have to see him hurt anymore, that his pain would be over and we could go on with our lives. He did not realize how much PAIN that would cause. If you are considering this option, I URGE you to tell someone and seek professional help. I can't promise that the pain of the TBPI will go away, but I can promise that there are people who care about you, and would miss you terribly. Please feel free to write me. Another thing my dad failed to realize is, the route he chose was permanent. I often wondered if he had waited just 24 hours to see how he felt tomorrow would he have made the same choice.

Kathy

Susan~
I hope it felt good to let all of that out. I remember sitting in my room and crying for hours wondering what kind of life I will I have. I thought no one would love my discusting deformed body, I can't dance, stretch, do the "YMCA" dance (you got to admit that was a bit funny) I felt of all the things your feeling. Its completely fine to feel that way but just pull it together and get out for awhile. Can you do the trip away with us? Can't see by all these messages to you that people care about you, people that have never even met you? We have a common bond and all we can do is share our sorrrow and hopefully our success. Life has its good times and bad. Would you wish this injury on anyone you know, probably not. Someone has to have it so look at yourself as a hero....your going to make it and maybe some day you can go in front of a crowd of people and tell your story and give others the will to live and over come tough times in life.
Trust me, this is rock bottom. Its only going to get better.
Kath

hey punchy sue hang in there i have had most of the same thoughts you have had probably some that are worse but dont give up the pain does ease after awhile i still have it but it does get easier to deal with do things to keep your mind off of it it does suck but you can over come it give us a hollar there are alot of people worried about you just look at the posts

I'm still here.

THANK GOODNESS-------------------

NOW, PLEASE, HANG IN THERE SUSAN----YOU HAVE SOOOO MANY PEOPLE PULLING FOR YOU, WORRIED ABOUT YOU-ON THIS NETWORK OF PEOPLE ALONE!---AND WE DON'T EVEN TRULY KNOW YOU LIKE YOUR FAMILY AND CLOSE FRIENDS AND COLLEGUES DO--I KNOW I SPEAK FOR THE BPI GROUP HERE WHEN I SAY WE WOULD FEEL TERRIBLE AND MISS YOUR QUIRKY SENSE OF HUMOR, AND YOUR FIGHT--CAN YOU IMAGINE HOW THE PEOPLE WHO HAVE KNOWN AND LOVED YOU FOR YEARS AND YEARS WOULD FEEL IF YOU LEFT THEM??????? REMEMBER EVERY DAY THAT THERE ARE PEOPLE THAT LOVE, SUUPORT, AND CARE ABOUT YOU--ALWAYS!!
>>
~~~~~~~~~~~~~~LOVE, SUZIE~~~~~~~~~~~~~~~~~~~~~

Susan,
I haven't met you but just through our communications back and forth, and by the way, that applies to all you wonderful people on the board that I have corresponded with or have read your postings. I feel like I have known you for a very long time and I was crying for you tonight with my father, telling him just how grateful I am to have you to support me. You Susan have given me so much encouragement and a lot of laughs as well with your adorable sense of humour as mentioned by Suzie. Susan, you are a dear friend to me. All of you have become my new family and when something is wrong, it effects me because I care, just like the rest of you do. It shows that we all care!!!!! Susan I am very relieved and happy that you are still here.
Love, Karen