United Brachial Plexus Network, Inc.

A NEUROLOGIST CAN DO AN EXAM AND ALSO AN NERVE CONDUCTION STUDY.
Fred

i had a test where they put needles with electric current? or something into where my nerve should be in both arms, and it shows little response when they sent it thru my right arm, and made my left arm fly into the air. the second time round i got 3 weeks of 1 appt a week of physio. and all doc prescribed was codydramol, then diclofenac, today i still ache in my scapula shoulder down my arm and in elbow, i want to be able to tell my doctor this is what i have, not just damage to the thoracic nerve. also i wondered if any1 could tell me how normal it is to have this thing reccurrently, over 6 years now. I have two young children aswell.

Ruth-I went to 6 doctors, physical therapy, & a chiropractor before I got diagnosed by the last doctor(a neurologist). Try a different doctor if they're not giving you an answer. It sounds like parsonage turner but I'm new at this. I've only had it for 3 months. Donna

There are several names given for peripheral neuropothies. I don't think it matters what it is called. The treatment is generally the same.

Fred

Fred,

As I have just been diagnosed, I can't imagine how hard this was for you. I am 24, and the onset of PTS has left most of my right arm numb from the shoulder down through the thumb. My bicept is usless.

I have a positive outlook on my recovery and am just thankful it is not something terminal. However,I am not able to work, I have been a server(waitress) for 8 years. I can still go to school and am taking 15 hours currently.

Did you insurance help you out financially?

Any information would be great. Your story is very touching and inspirational. Your wife sounds lovely.

Thank You,
Karen

I had Parsonage-Turner several years ago. I had it three separate times, first in my right shoulder, then my left and then in my right again. I lost the use of my thumb and forefinger as well as the atrophy and weakness of the shoulder and forearm with numbness.The best treatments I received were injections of Vitamin B Complex, along with painkillers and heat therapy. I don't know whether any doctors will use B Complex injections any more, but I swear by them. Good luck, it does get better but very slowly and I still have permanent upper arm weakness.

I tried to reply a few minutes ago, don't know what happened. I had Parsonage Turner three times several years ago, once following child birth. The best treatments I found were Vitamin B Complex injections, pain killers and heat therapy. I don't know whether any doctors will administer B Complex injection any more, but mine was an older M.D. who was at a loss what to do for me. I was told to take high doses of B Complex for the rest of my life. Good luck, it does get better but I was left with permanent upper arm weakness.

I have parsonage turner secondary (this time, the first attack was after my vaccinations as a child) to a dental extraction last May. My great uncle got it after being gassed in WWI, so he must've been diagnosed shortly after it was named.
Using a sling while walking has helped immensely, as has having a pillow under the arm when I sit. A water filled pillow with adjustable thickness has been very useful for my neck. Other than that, the best pain control has been provided by oral cannabis, prepared either as Organic Cannabis Oil (OCO) or in coconut oil. I also use a cannabis based rub on the shoulder. Obviously I am in a medical state. Opiate and opioids don't touch it.

Hello, I had the parsonage turner syndrome three months ago and now I'm taking the use of the arm. Unfortunately it was not diagnosed until after a month and a half and I had severe pain. Advice to those who happen to use this heat (hot water baths, patches).
I wanted to ask for advice on rehabilitation, what you recommend? I would also like to know whether the muscle that has atrophied is recovered 100% or less, and if the pain that I still have will disappear with time.
Thanks for your answers.

What is this, Something to try I guess???
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Finding a True pain relief trying to adapt Is a Quest trying in life
I would rather be in pain in trying than being despair not trying to adapt
Just posting from the No help club here Posting from the past
It is better to try than give up!!!!
We all try by post here There is many posting, with help and without hope to
Well than help happen by trying to We all find are way Trying, It is fact by Post, I think What a Baby learn in a life time and trying with Birth erbs trying to help , well it happen here to by post To
Are injury are never the same trying , well it all about us trying With or without a doctor help or direction in life
I wish i was better at Grammar to Explain I try We all come with a Hug, By our post trying
Just thinking
Tom