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Re: Coping with Palsy as a teen

Posted: Fri Mar 04, 2011 7:03 pm
by Becka
karategirl1kyu wrote:mine is shorter too :) you are not alone!! i think it has something to do with the nerve damage... i know a few other adults with shorter arms too!
Yeah mine was like that but it was when my muscle pop, cause my arm was hanging on to something. my mom says some kind of bone. :)

Re: Coping with Palsy as a teen

Posted: Sat Mar 05, 2011 2:31 am
by karategirl1kyu
yeah, one or all of the bones dont fully grow, and the muscles are usually a bit weaker so they are not as defined in the affected arm.

Re: Coping with Palsy as a teen

Posted: Sat Mar 05, 2011 3:22 pm
by Becka
yep i know that feeling ;)

Re: Coping with Palsy as a teen

Posted: Sat Mar 05, 2011 3:47 pm
by karategirl1kyu
i think most of us do :P but anyway... how goes it????

Re: Coping with Palsy as a teen

Posted: Sat Mar 05, 2011 7:56 pm
by Becka
I'm fine, My arm is fine. well, the only thing is that it flinches when I'm asleep

Re: Coping with Palsy as a teen

Posted: Sun Mar 06, 2011 4:44 am
by karategirl1kyu
i can relate to that too :) ...except mine twitches during the day sometimes... i dont know about when i'm sleeping because, well, im sleeping! LOL! ...its doing it right now :P ... it usually depends on my arm position, and it feels funny sometimes...

Re: Coping with Palsy as a teen

Posted: Sun Mar 06, 2011 4:01 pm
by Becka
true

Re: Coping with Palsy as a teen

Posted: Wed Mar 16, 2011 4:58 pm
by Becka
Don't you hate it when you feel like you want to ripe your arm out of its socket? That's how i feel right now :x

Re: Coping with Palsy as a teen

Posted: Fri Mar 18, 2011 1:18 pm
by Carolyn J
BUMPING UP for Elizabeth. :)
Carolyn J

Re: Coping with Palsy as a teen

Posted: Sun Mar 20, 2011 5:18 pm
by Elizabeth Beaulieu
Hi, well I'm a junior in high school and I have a right BPI... Everyone has good days and bad days... I come from a very small town and everyone knows everyone and everyone knows that I have a BPI, so they don't really treat me any differently. I don't let my arm stop me, and when someone tells me that I can't do something, I prove them wrong and do it. You're not a freak. Everyone has some flaw... I'm in pain all the time too, but you can't let that stop you. I try to put a brave face on and not let anyone know that I'm in pain. The only thing you can do for that is take tylanol or any other kind of pain med. I play trumpet, basketball, and volleyball and I just come up with different techniques to play. And when it comes to telling people whats wrong with me, then I ask them if they want the long version or short version. If they say long, then I start by saying what my doctor did, and if they want short, I just say nerves are pulled out of my spine, so my arm doesn't grow... I guess as time goes by, you get used to the pain... If anyone has any questions, feel free to ask... Or if anyone needs to talk to anyone, I'm here to listen. I'm a very good listener :)