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Re: Mom looking for advice

Posted: Tue Jan 18, 2011 12:42 pm
by marieke
I did, but you knew that already! :)

Good luck, let us know how it goes!

Re: Mom looking for advice

Posted: Thu Jan 20, 2011 5:38 pm
by erica
Hi!
I had a tendon tranfer from my lower arm to my four fingers in my bpi arm. It was done by Dr. R. Harrop in Calgary Alberta. He actually went to school with Dr. Clarke. He does do BPI surgeries. Also I know a family in Calgary who appealed the alberta health care and had surgery on their then three year old with Dr. Nath in Texas. That was 11 years ago.
Erica

Re: Mom looking for advice

Posted: Sat Jan 22, 2011 7:29 pm
by trp314
I took my daughter to Shriners in Philadelphia to see Dr. Kozin. He was amazing. I have seen many people there from different countries. Please check him out, I couldn't have asked for a better Dr.

Re: Mom looking for advice

Posted: Mon Jan 24, 2011 3:13 pm
by bpiparent
Hope this helps but Shriners, at least the one in PA I am pretty sure they do not charge families for services. They charge your medical if it pays it pays, but my understanding is that you are not going to be charged. Check the website. There are a lot of posts about Dr. Kozen (some other parents should know how the insurance works there) we saw him for a consultation and he gave us a glowing recommendation for the Dr. we were scheduled to have surgery with. I have heard wonderful things about him and if he did not recommend the other Dr ( which was much closer to home) we would have had surgery with him. I wish you well.

Re: Mom looking for advice

Posted: Tue Jan 25, 2011 8:48 pm
by Damians Mom
Thanks everyone for all the wonderful help and advise. We just sent the video of Damian to Montreal to be reviewed so hopefully it won't be long until they determine if there is anything they can do for him there. We are definetly still keeping Dr Kozin in mind as we have heard nothing but great things about him. I will be sure to post when we hear back.

Agains thanks to everyone the support is great.
Damians mom

Re: Mom looking for advice

Posted: Mon Feb 07, 2011 9:44 pm
by Damians Mom
We received word back from the Dr in Montreal and she stated that she is satisfied with Damians range in movement that she saw in the video that we sent her and she would not consider surgery at this time...I don't understand how they can decide that THEY are satisfied with his range in movement, when it should be him and his parents that decide if they are satisfied and should we really say we are satisfied unless we try. I feel that if he has the chance to gain any range no matter how well he functions now, shouldn't he be given the choice and chance. She is still willing to consult with us so we will still be doing that and I will also be forwarding his files to Dr Kozin to review.