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Re: My daughter has to have surgery
Posted: Sun Jan 17, 2010 8:32 am
by sofia's mom
Just an update on my little angel. We had 3 nerve transfers on December 2nd at Cinn. Childrens Hospital with Dr.Foad. My Sofi is doing great! No new movement yet, but we are back in therepy and I understand it will take 3-4 months, give or take, for anything new. My little angel is such a fighter!! I was so afraid this would scare her personality, boy was I wrong! She is the happiest and the absolute best baby ever!!!!!! I am so thankful for the team at Cinn. Childrens!! Thanks Guys!!!
Re: My daughter has to have surgery
Posted: Mon Jan 18, 2010 2:13 am
by EvelynsMom
Keep on Keeping on!
Our daughter had surgury at Cinn. Childerns at 4months of age. She had similar injuries to your sofie, C5 was completely avulsed and C6 was partially. They performed nerve transfers for C5 and nerve graphs for C6. She is 18 months old now, and we still attend OT weekly and just finished a round of NMES. We could have never predicted her amazing progress.
I thank God every night for leading us to Cinn. Childrens! The whole team there is absolutely amazing!
I think the Ot is the biggest factor in the recovery, at least for us.
Re: My daughter has to have surgery
Posted: Wed Jan 20, 2010 12:36 am
by hope16_05
So glad that Sophia did well with surgery, I hope the results are amazing! Be patient, it takes a long time to regrow nerves!
Hugs,
Amy
Re: My daughter has to have surgery
Posted: Wed Jan 20, 2010 8:41 am
by sofia's mom
hope16_05 wrote:So glad that Sophia did well with surgery, I hope the results are amazing! Be patient, it takes a long time to regrow nerves!
Hugs,
Amy
Thanks so much for the encouraging words!
Re: My daughter has to have surgery
Posted: Wed Jan 20, 2010 8:42 am
by sofia's mom
EvelynsMom wrote:Keep on Keeping on!
Our daughter had surgury at Cinn. Childerns at 4months of age. She had similar injuries to your sofie, C5 was completely avulsed and C6 was partially. They performed nerve transfers for C5 and nerve graphs for C6. She is 18 months old now, and we still attend OT weekly and just finished a round of NMES. We could have never predicted her amazing progress.
I thank God every night for leading us to Cinn. Childrens! The whole team there is absolutely amazing!
I think the Ot is the biggest factor in the recovery, at least for us.
Thank you so very much for all the positive feedback!
Re: My daughter has to have surgery
Posted: Wed Jan 20, 2010 1:20 pm
by karan71
Ugh...Boy I remember those days..our son who is now 9ys old had his first of several surgery starting when he was 4 1/2 months old in Texas. ( We live in NY)..and leading up to it.. it seemed like a blurr everything moved so fast. ( Maybe not at the time). And the entire situation didn't hit until we were in our hotel room and I looked out our window and saw The University of Houston starring me in the face. I remember thinking "oh my god we are in texas"!! I wanted to grab the baby and run.I thought I was going to collapse. Thats when the magnatide of all of it hit me. Strangly enough thats when I found my strength. Be sad, Be grateful, Be angry, be all the things you feel but remember to be strong. you will find your strength. I found mine. And now when I look back I think Wow...You will be in thoughts and prayers. And honey you not alone.
Re: My daughter has to have surgery
Posted: Sat Jan 23, 2010 10:06 am
by sofia's mom
karan71 wrote:Ugh...Boy I remember those days..our son who is now 9ys old had his first of several surgery starting when he was 4 1/2 months old in Texas. ( We live in NY)..and leading up to it.. it seemed like a blurr everything moved so fast. ( Maybe not at the time). And the entire situation didn't hit until we were in our hotel room and I looked out our window and saw The University of Houston starring me in the face. I remember thinking "oh my god we are in texas"!! I wanted to grab the baby and run.I thought I was going to collapse. Thats when the magnatide of all of it hit me. Strangly enough thats when I found my strength. Be sad, Be grateful, Be angry, be all the things you feel but remember to be strong. you will find your strength. I found mine. And now when I look back I think Wow...You will be in thoughts and prayers. And honey you not alone.
Thanks Karen for the encouraging words!! I am sad, angry, distraut, stressed but am staying STRONG!!! I am so thankful for this website and all the positive feedback!!
Re: My daughter has to have surgery
Posted: Sun Aug 22, 2010 12:27 pm
by sofia's mom
I haven't been on here for a while, wanted to give an update about my baby. My little Sofia has now turned one!!! YAY!! She is doing awesome with her o.t., e-stem and constrant therepy!! We are still working hard everyday to get the most movement out of her arm!!! She is such a strong willed little thing and she will let nothing stop her at all!!! Guess she is like her mother!
I want to thank everyone for all the support and encouraging words throughout our journey!! Thank you
Re: My daughter has to have surgery
Posted: Fri Nov 05, 2010 2:04 pm
by Carolyn J
Bumping up for new family.
Carolyn J
Re: My daughter has to have surgery
Posted: Fri Nov 05, 2010 2:06 pm
by Carolyn J