United Brachial Plexus Network, Inc.

Wanting to let you all know that I took all your replies to heart. Ashley's teacher suggested talking to all the students , in an open discussion , about how each of us are different and have difficulties. Not only would she be talking about Ashley but each of the kids. One girl currently has a broken wrist, one boy wears glasses, some children need extra help with their studies, and so on. When I asked Ashley how she felt about it she said she would be embarrased. I told the teacher she said no and we left it at that. Still part of me wishes she would speak up and explain to the other kids that she does not play tag because she trips and falls, or that she does not do circle games, such as ring around the rosey, because she cannot move her arm out to reach anothers hand. I imagine that is what works for her for now so I will not push it!



btw- Francine, glad to hear Maia had a better day today.

Lenni

Hi,

Well, my take on this topic is pretty well-known, I've posted before on our experiences...our approach is very open and honest, we have always addressed this issue head on in school and elsewhere.

But, that is our family "personality" and way of being, it works best for us. I think it is important for you to look at your overall philosophy and go with your gut instinct. In our case my son has always preferred to let everyone know exactly what the deal is so that he can then avoid the constant questions and misperceptions. We even go a bit further and CELEBRATE bpi awareness week at school. Works for us...but again, it all depends upon personality and philosophy.

Bridget