United Brachial Plexus Network, Inc.

Dear friend Carolyn,
Yes indeed Florida is a definite go for me. No matter the time or the place. After September 26(Jacob turns 18) I'll have nothing to be responsible for and depending upon my mental state, which is deteriorating, I will be able to travel most anywhere. I could drive or I could fly. My concern is really meeting and seeing others pretty much like myself and I already bum myself out. So I can not imagine a roomful of me's.
As information gets disseminated and time marches on I will wait and see. I would very much like to meet you, Kath, Wendy Lee, Sue, Ellen and Janelle. Of course Christopher as a guest speaker/motivator wouldn't be a hard sell either...
Scott


Message was edited by: swhite1


Message was edited by: swhite1

"If there was a strong interest in cure advocacy, injury awareness, different experimental therapies to be discussed by practitioners (Low Level Laser Therapy, Hyperbaric oxygen therapy (HBOT), Stem Cell regeneration therapy, Neural regeneration research, etc.), or specialists aiding people returning to an athletic and active lifestyle then I would be interested. After 5 years of posting this kind of information on this site, it is evident that no one else is really interested in it or cares enough to make a proactive effort in putting this injury in the history books."

Rich the things you talk about here are what I would like to see happen too. Unfortunately I am not very political so wouldn't know where to start. If you have some suggestions I am all ears and actions.

I read all your posts about the new tests and treatments they are working on and would love to see something come along to actually help. I know Dustin would be willing to be a test subject.
Sue