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Re: Botox for external rotation & supination (esp for infants & toddlers)

Posted: Mon May 28, 2007 7:11 am
by BPI mom
Marieke,

Thanks for the great website. So is botox something that is living (like a virus) and the body fights it off and kills it over time?

Also I know that we are not rats, but what did the drs say about possible reproductive effects? Is there another site that tells you how many people (of what ages) received botox over the years and how we know about long term effects?

Is it possible that it lies latent for a period of time? Thanks.

Re: Botox for external rotation & supination (esp for infants & toddlers)

Posted: Mon May 28, 2007 10:08 am
by Adrienne
BPI mom,

A subluxed shoulder occurs when the head of the humerus moves beyond what is physiologically normal (typically forward) but returns back to its normal position. The capsule and ligaments are stretched or possibly torn and the shoulder area is painful and tender. Proper rehabilitation is necessary to ensure proper healing so that dislocation doesn't become a common occurrence (from http://www.healthyroads.com/mylibrary/d ... juries.asp)

Christopher is only in pain when we try to externally rotate his arm, but not with "normal" usage. He also had issues with his glenoid as well, but hopefully, Kozin's surgery addressed these issues. We'll see shortly.

See my description about the ice cream cone - when the shoulder blade "wings" out. If you'd like, send me your e-mail address, and I'll e-mail you pictures of Christopher's shoulder before the surgery so you can see what it looks like.

This doesn't come from botox, but as a result of the BP injury. In Christopher's case, when he was delivered, they pulled on his arm and mislocated (not dislocated) the socket in addition to straining the nerves.

Hope that helps.

Adrienne

Re: Botox for external rotation & supination (esp for infants & toddlers)

Posted: Mon May 28, 2007 10:16 am
by Adrienne
Botox is botulinum toxin type A (botulism) The toxin blocks the nerve impulses, temporarily paralyzing the muscles.

Christopher's triceps and brachial radialis were overpowering his biceps, giving him too much internal rotation. He had the injections in the above muscles to temporarily allow us to strenthen the biceps.

It wore off after about 5-6 months. From what Dr. Brushart, the plastic surgeon from Dr. Belzberg's team told us, in children, it could become permanent with multiple doses in the same place.

I'm sure if you called Dr. Brushart, he'd be more than happy to answer your questions on Botox. It's a relatively new procedure for BPI's in kids.

Re: Botox for external rotation & supination (esp for infants & toddlers)

Posted: Tue May 29, 2007 9:15 pm
by Sidney's Mom
Sidney had her nerve graft surgery in March and had botox injections with it. She's now crawling, without the waiter's tip and pulls herself up using her effected arm. I think it's made a world of difference.