Outreach sightings yet?

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: Outreach sightings yet?

Post by brandonsmom »

Wow still no outreach here in Illinois !!!! They cannot even blame the weather as it has been beautiful here !!! GAYLE
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richinma2005
Posts: 861
Joined: Thu Sep 29, 2005 12:00 pm
Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.

Re: Outreach sightings yet?

Post by richinma2005 »

got mine in boston today as well as the zipper pulls which look great!!
Allison-S
Posts: 53
Joined: Fri Feb 06, 2004 8:27 pm

Re: Outreach sightings yet?

Post by Allison-S »

Got mine today. Nice job folks! Very interesting article about Dr Price. I had no idea his sister had a bpi. It's amazing how this injury changes peoples lives in such a positive way.
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Outreach sightings yet?

Post by Kath »

Still not here in NY...
Feeling left out
Kath (adult/robpi)
Kath robpi/adult

Kathleen Mallozzi
jackieb
Posts: 14
Joined: Tue Mar 05, 2002 9:18 am
Location: Australia

Re: Outreach sightings yet?

Post by jackieb »

thanks, received mine about 3 days ago, victoria, Australia :)
tomp
Posts: 40
Joined: Fri Jul 29, 2005 5:44 pm

Re: Outreach sightings yet?

Post by tomp »

Yeah!!! We got ours (Southern California). I'm also in it. Check out Joshua's and my picture on page 15. Wow, we're famous and published too. If you want my autograph (since I'm so famous), you can send money to my people.

On a serious note, I hope my answers to the questions help in some way to someone out there.

Tom
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Outreach sightings yet?

Post by Carolyn J »

BOY! ...I am REALLY getting ticked waiting...my poor blood pressure, Marieke, it's all your fault keeping secrets about your surprise.

Tom, I can't wait to read your Wisdom.AND, Thanks for posting more often too.

HUGS all around,
Carolyn J
Adult LOBPI,68 & Proud of it!
Carolyn J
Adult LOBPI
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Outreach sightings yet?

Post by marieke »

heeheehee!
Again.. this is kinda fun! (poor Carolyn!)

Marieke (31,LOBPI)
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Outreach sightings yet?

Post by Kath »

Tom
It is great to read about the Fathers feelings.
So often is all about the child and the Mom's and the father's seem to be left out.
It is so important.

Now for the money.... do you have an Agent and what's his cut? LOL..

Kath (adult/robpi)
Kath robpi/adult

Kathleen Mallozzi
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