Courtney.......
I just wanted you to know that almost 5 months ago when my little girl was born I had NO idea what was wrong with her, there wasn't a doctor around that would give me an honest answer. I was, to say the least, lost, confused, hurt and angry. I got on line and looked up what this lawyer (a friend) told me was wrong with my baby and that's how I found this site.... then things started to come together, I didn't feel so alone and A LOT of what I've learned has came from all the great people that DEPEND ON YOU AND THE OTHER VOLUNTEERS THAT GIVE US THIS BOARD.
My sanity thanks you and everyone else responsible for this site!!! I appreciate it more than any words can say! You all are a blessing in my book and now is a good as time as any to say "THANK YOU FOR YOUR TIME AND ALL THE HARD WORK"
Oh Yeah, I like the off topic posts, everyone needs to smile and sometimes you can find answers in the last place you'd think to find them! But no one needs to be hateful.....
Lots of blessings to everyone!!!!!!
Amy & Family!!
I'm Feeling SO SAD Because.....
-
Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: I'm Feeling SO SAD Because.....
Amy
I'm glad you found us too!
It's notes like yours that reinforce my commitment to UBPN.
I was 60 when I discovered I was not the only one in the world with OBPI.
It was great to discover that I was not alone anymore and I had others to talk to, who understood.
Kath (robpi/adult)
Kathleen Mallozzi
Member UBPN Board of Directors
I'm glad you found us too!
It's notes like yours that reinforce my commitment to UBPN.
I was 60 when I discovered I was not the only one in the world with OBPI.
It was great to discover that I was not alone anymore and I had others to talk to, who understood.
Kath (robpi/adult)
Kathleen Mallozzi
Member UBPN Board of Directors
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
-
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: I'm Feeling SO SAD Because.....
Amy,
Like Kath, I came l-a-t-e to UBPN at age 65 and only learned the name of my injuries at the same time. I am sooo grateful to all of my UBPN Family for constant love and support especially the unexpected healing I recieve when I post and share over the past 3 years. AND Family CAMP 2005 I attended was positively Heaven for me to meet alot of families...that was healing too. When you Give YOU GET double!!
HUGS all around.
's
Carolyn J
LOBPI, 68 & proud of it!
Message was edited by: Carolyn J
Like Kath, I came l-a-t-e to UBPN at age 65 and only learned the name of my injuries at the same time. I am sooo grateful to all of my UBPN Family for constant love and support especially the unexpected healing I recieve when I post and share over the past 3 years. AND Family CAMP 2005 I attended was positively Heaven for me to meet alot of families...that was healing too. When you Give YOU GET double!!
HUGS all around.
'sCarolyn J
LOBPI, 68 & proud of it!
Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI