New Roll Call
Re: New Roll Call
Hi Everyone, I am Sandi Raney, 34, from Bacliff, Tx(right in the middle between Houston and Galveston) I am Mommy to Megan, 10, LOBPI. I am also Mommy to Chris, 8 and Alexis, 2. And I am Step- Mommy to Stephanie, 13 Ryan, 21 Daniel, 18 and Joey, 19.
Re: New Roll Call
I was going through old posts and found this one in case anyone is new (like myself) would like to read it!
My name is Amy, I have 5 kids, 4 boys and 1 girl who is 3 1/2 months old and ROBPI!
I could rant on and on about all these confused thoughts and the roller coaster of emotions but I don't have that much free time
)
I am so grateful for finding this board, a lot of my questions have been answered with straight forward honest answers, I am thankful to everyone that understands and gives me the answers that no one around me seems to be able to answer. I keep so much to myself because I don't want the boys to see me upset so this site is truly a blessing.
Best wishes to everyone!
Amy & Family
My name is Amy, I have 5 kids, 4 boys and 1 girl who is 3 1/2 months old and ROBPI!
I could rant on and on about all these confused thoughts and the roller coaster of emotions but I don't have that much free time
)I am so grateful for finding this board, a lot of my questions have been answered with straight forward honest answers, I am thankful to everyone that understands and gives me the answers that no one around me seems to be able to answer. I keep so much to myself because I don't want the boys to see me upset so this site is truly a blessing.
Best wishes to everyone!
Amy & Family
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: New Roll Call
Amy,
Thanks for "bumping" this Topic Thread up again. WELCOME TOO to our UBPN Family!
I've been around for 3 yrs, but I still learn alot from every post,every day. And the HUGS are fabulous, I feel every time.
Hugs to everyone new,& WELCOME!
Carolyn J
Adult LOBPI
Age 68 & Proud of it!
PS....I live in Tacoma Washington [state]
Message was edited by: Carolyn J
Message was edited by: Carolyn J
Thanks for "bumping" this Topic Thread up again. WELCOME TOO to our UBPN Family!
I've been around for 3 yrs, but I still learn alot from every post,every day. And the HUGS are fabulous, I feel every time.
Hugs to everyone new,& WELCOME!
Carolyn J
Adult LOBPI
Age 68 & Proud of it!
PS....I live in Tacoma Washington [state]
Message was edited by: Carolyn J
Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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ZaidraZavian
- Posts: 44
- Joined: Thu Sep 02, 2004 4:15 pm
Re: New Roll Call
I'm Zaidra, mom of Zavian (lobpi) who will be 4 in January. We live in Baton Rouge, Louisiana with Zavian's dad, Paul and brothers, Cameron, Aaron, and Terrance and sisters, Paula and Tosha
Re: New Roll Call
I am Stephenie Gray mother of Allie Gray 3 years old with Left BPI. We live in Haynesvill, Louisiana north on the Arkansas line.
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Matthew's Mom
- Posts: 7
- Joined: Mon Oct 02, 2006 11:50 am
Re: New Roll Call
Hi I am Corrine wife to John Mother to Brian 19, Nicole 13, and Matthew 4 (rbpi) we live in Fla. Matt has had 2 surgerys with Dr Nath at TCH. I know their are more surgerys down the road, I am dreading them.
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JamieMarie'smommie
- Posts: 178
- Joined: Thu Apr 14, 2005 11:21 am
Re: New Roll Call
Hi all i'm Amanda mom to Jamie-Marie 18months ROBPI. We live in New Hampshire.
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Miah's Mom
- Posts: 39
- Joined: Wed Nov 15, 2006 12:32 pm
Re: New Roll Call
Howdy! My husband & I are new to this site. I'm Miah's mom. She is 3 and has had 2 successful surgeries, and 1 scheduled for Dec. She also has an older sister who is 4, and a new brother or sister due in Feb. We live in the Hamilton area.
Re: New Roll Call
My name is Susan, 38 and married to Eric, and mama to Mirthe (5) and Anna Machteld (2). Anna has a ROBPI and was not operated -- a late recover (at almost 5 months) she now functions at about 90%. Anna will turn three in January. We live in the Netherlands.
Re: New Roll Call
Hi Everyone I'm MaryAnna my son is Frankie 13 yrs old with a LBPI he has had a nerve graft at 10 months a tendon transfer at 18 months and the mod Quad 2 weeks ago at 13.