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Re: New Roll Call
Posted: Wed Apr 06, 2005 9:41 am
by admin
I'm Lauren Engle, mom to Brooke, 3 months old, LOBPI. We are from Illinois.
Re: New Roll Call
Posted: Wed Apr 06, 2005 1:07 pm
by Wayne
Hi, I'm Wayne, father of Ryan 5 yr old ROBPI, we live in San Diego, Ryan has had the nurolysis, mod quad, capsolodesis in TCH and will have the TT on May 12. I have learned a lot form this site, I only wish I would have found it sooner.
Re: New Roll Call
Posted: Wed Apr 06, 2005 4:10 pm
by alyssasmommy
Hi,
I am Jody - mom to Alyssa - Left BPI from birth. We live in the San Fernando Valley, just outside of Los Angeles, CA. Alyssa will be 8 in September and we are scheduled for our 4th surgery - the Triangle Tilt on May 19th with Dr. Nath.
Jody G.
Re: New Roll Call
Posted: Thu Apr 07, 2005 1:34 pm
by Sam/Adam
Hey I'm Adam. I dont know all the abbreiveations but i have a total left arm brachial plexus injury. Its about 2yrs old. I was a paramedic who liked to ride motorcycles. Now im a Engineering major who wishes he had never ridden a motorcycle.
Re: New Roll Call
Posted: Fri Apr 15, 2005 5:39 pm
by BIGJAVSMOM
HOW NEAT!!! I LOVE THIS SITE...
MY NAME IS MARLYN AND MY SON IS JAVIER. NICKNAME JODY.
BORN 5-10-04 RBPI. VERY SEVERE. NO MOVEMENT, UNTIL HE WAS OVER 6 MONTHS OLD. HAD SURGERY FOR NERVE REPAIR AND NERVE GRAFTS DONE ON FEBRUARY 14 AT MIAMI CHILDRENS' HOSPITAL. PERFORMED BY DR.SANJIV BHATIA.
BUT OTHER THAN THAT HE IS "FAT-FAT", AS HIS BIG BRO-BRO LIKES TO CALL HIM. MY EMAIL IS
MARLYNDDJ@AOL.COM.
CONTACT ME- I LOVE TO GIVE AND RECIEVE NEW INFO.
Re: New Roll Call
Posted: Sat Apr 16, 2005 1:22 pm
by admin
HI ADAM- YOU PROBABLY HAVE HEARD THIS AND ARE PROBABLY TIRED OF HEARING IT.
BUT YOU HAVE TO REMEMBER THAT OUR FATES ARE ALREADY WRITTEN AND EVERYTHING HAPPENS FOR A REASON. MAYBE YOU WILL BE ONE GREAT ENGINEER AND INVENT SOMETHING TO HELP BPI OR PREVENT IT ALL TOGETHER. LIFE WOULD NOT GIVE US ANYTHING WE CAN'T HANDLE. TAKE CARE.
Re: New Roll Call
Posted: Sun Apr 17, 2005 8:21 pm
by Mich
Hi I'm Michelle and I'm also fairly new. I'm mom to Holden and Brendan(ROBPI), he's now 6 and about 95% recovered. We live in Ontario, Canada.
Re: New Roll Call
Posted: Mon Apr 18, 2005 10:13 am
by JamieMarie'smommie
Hi I'm Amanda mom to 6wk old Jamie Marie(38wks 10lbs)(born March 10, 2005) she was a nonmedicated vaginal birth. The doc had to use the vacum after 22hrs of labor and 4hrs of pushing. Jamie and I live in New Hampshire.
Re: New Roll Call
Posted: Sat May 21, 2005 10:16 am
by dpickett
Hello everyone,
I am the proud Mom of Sam, almost 2 and Rebecca born Feb. 3 05 with RBPI. We live just outside of Milwaukee, WI. Rebecca is doing great, starting moving her arm April 18th and seems to improve everyday.
Re: New Roll Call
Posted: Sat May 21, 2005 10:25 am
by Carolyn J
Hi all'
Just reminding...I am an adult LOBPI,soon to be 67[yikes!]and I've had next to none interventions.I just found out a name for this only in 2003. I am looking forward to hugging everyone at Camp in September.
Carolyn
PS... feel free to ask any questions.