United Brachial Plexus Network, Inc.

We have the video that we made and sent to TCH to see if our son needed the primary surgery or not. I am not sure if that would help or not, but it shows that he was in pain when his arm was lifted up, the way his little hand just literally dangled in the air, and it shows the really tender, pink skin under the arm; because of the internal rotation, the skin does not have a chance to breathe, so it gets really irritated. Anyway, I am willing to help if you think that this video will be of any good.

We have the video that we made and sent to TCH to see if our son needed the primary surgery or not. I am not sure if that would help or not, but it shows that he was in pain when his arm was lifted up, the way his little hand just literally dangled in the air, and it shows the really tender, pink skin under the arm; because of the internal rotation, the skin does not have a chance to breathe, so it gets really irritated. Anyway, I am willing to help if you think that this video will be of any good.

I will be giving a presentation regarding Brachial Plexus Injuries to a group of council members from Early Intervention Services from 3 different counties in Pa. Invitations were also sent to all parents from these 3 counties that have bpi kids. The counties cover 100's of miles. I hope we have a good turn out. I will basically be telling my story and what we went through(for the 100th time). I have many materials to give out in hopes that I can spread the word at least to the PT/OT community. There will be a 30 min. question and answer pd. at the end. I also have a time line of pictures of my little guy. I'll keep everyone posted after it's over.

Allison,
That is great news!!! Congtatulations!!! I would love to use your presentation info to include in the package and the timeline. Anything you would like to share. Agair refer to the initial post and send the info. asap. Good luck I know you will do great. Your motivation will lead the way.
Ashley

I had to bring this to the top again. I want everyone to see and understand the importance of this. We have a way in this time. I am going to post a deadline for all info soon.
Thank you again
Ashley

I have the video we made for TCH to see if my son was a candidate for the primary surgery, it shows his wrist just dangling there and it shows the pain with the ROM and the pink, raw skin under the arm from not being able to move it. I don't know if this will help or not, but I will send it to you if you think it will benefit our cause.

null,
Like I said to others. Anything that you would like to share will be usefull. Every bit of info adds to our strive to make the World see our side of the story. Our main objective is to create an awareness between women that will stick. Thanks for your help.
Remember to send me a copy, as you will not get this back.
Thank You,
Ashley

I wanted to bring this up again enlight of the Adult BPI's who have responded.
Ashley

O.K.
Keep sending. I have decided to go ahead and place a deadline on the info. May 12th will be the deadline. Please send anything you would like to include on or before May 12th. Thank you everyone for your support so far!!
Ashley

Hey there,

I am glad to see so many responses! I hope that you are getting tons of good stuff. Please call me when you have received all and let me know when I can expect the goods. This is getting soooo exciting! Hope to hear from ya soon!