Hi, Sorry I haven't been checking in lately. I am still doing testing, going to PT, numerous Dr. appts.
Saw a neurologist in Chicago last week, he is a peripheral nerve expert, Dr. John Ratliff, think he does a lot of TBPI surgeries. Anyway, he says all the pain, numbness/tingling and cold hand are still due to the effects of the neuritis and could last 3-6 months or more longer. Have also discovered I have severe osteoporosis, and thoracic scoliosis, probably due to
compression fractures. Now I am small-framed, white, female and a smoker, but as I am only 41 and not menopausal, this was a big shock!! Kicker is the ortho tried to tell me I had scoliosis from childhood, always leaned to the right and just never noticed it! If I hadn't told my GP I wanted a bone density test, we would never have found the osteo until I broke something! So stay with your gut impulses, Dr's are fallible too!
I also have a trap injury which, along with the neuritis, has caused my rt shoulder to drop considerably. Dr Ratliff said the asymmetry I have is worse than if the Spinal accessory nerve was severed due to surgery. Some may be from my leaning due to the scoliosis, which became more apparant after the neuritis weakend nearby muscles that were compensating for the lean. I still think there is compression at the BP, the armpit, possibly both, as I still have lots of discomfort there. The hand coldness has progressed from just last 2 fingers to whole hand, this began 2 months after onset of neuritis, and the neuritis peaks at or soon after onset, for symptoms to progress 2 months later I think indicates nerve compression due to the dropped shoulder. According to PT my scapula is winging mildly, the scap is rotated and depressed. Anyway, have shoulder blade and back discomfort as well as continued shoulder, elbow and hand pain. Am to have more EMG testing, first one they only tested the trapezius muscle in the shoulder girdle, and a few arm muscles, am to get entire arm, shoulder-girdle and neck tested. Not looking forward to the procedure, but WAY anxious to finally get better idea of damage.
It has now been 3 1/2 months since tetanus booster, and am having to accept this is not going away soon. May resign from my teaching position at least for fall semester, it has been a real strain to finish this year,even though I work part-time, 4 mornings a week. I teach 2-3 yr-olds, and they require lots of energy and a cheerful outlook, which are in short supply. Plus I don't need to be lifting any weight right now, even a child, am really apprehensive I will cause further damage to my back and shoulder.
School is finished tomorrow, then I am going to relax and figure out what is next. I will likely look into compensation from the Vaccine Injury fund, but think it will be a long and dirty battle, my Dr's still don't mention the tetanus booster as the aggravating incident.
Am doing very little of the PT exercises at home as they tend to flare the shoulder and make the neck muscles so tight I cannot turn head in any direction more than a little. If there is nerve impingement, the strengthening exercises with Therabands are the wrong thing for me to do, don't want to get worse!
Feel free to email me, addy is
bjones@npoint.net, it helps to talk to others who are going through the same thing!Take care,
Beth