United Brachial Plexus Network, Inc.

I'd like to thank you all so much. I am Cameron's Nana. Finding this site when we did was a Godsend to us. I have read many of the different posts and am comforted by the support here. I know that we have a long road to go and it means alot to know you are here to help. Hopefully, in time, my daughter, Cam's Mom, will find this site helpful to her as well. She has a fantastic support system, No. 1 being her sister who posted this. This is all new to us and frankly, scary as ****! Again, I can't thank you enough for your words of wisdom and well wishes. I'm sure we will be picking your brains alot in the months, well probably years to come!

to loving cameron, if camerons mom cant come on here for herself for whatever reason, there are the two of you who can come on here any time you wish. although some of us were injured as adults, we can still give you the support, advice, listening to you sound off, yes a lot of people get on here and let off some steam when it gets too much for them, and just about anything else you need. welcome to the club we wish did not have to exist.

I will say, our son had eye issues, too, and we were told there is another way for the eye on the BPI to be made droopy, related to the BPI but in a different area than that which causes Horners, and is not connected to avulsion. Our had a droopy eyelid but there were some other symptoms for Horner's which he did not have. He had reasonable recovery, needed a shoulder surgery but no nerve surgery.

Kate

Thank you again everyone. I saw my angel this morning and he was squeezing my finger with the affected hand. I know this doesn't mean that he doesn't have a long road ahead of him, but it is certainly a positive sign. Things are sinking in a bit with my sister, and she is anxious to get to see Dr. Belzberg and hear his evaluation of the injury.

That is a amazing sign Keep the faith...

Welcome to our UBPN Family.( I can't remember if I posted this before and am short on time to check) . We've never asked to be in this "BPI world", but we do care, we understand instantly where you are and give support.Everyone is welcome on any message forum boards.
Carolyn J
LOBPI/74
Carolyn

WOW!!! WHAT GOOD NEWS!!!! that is awesome. maybe he will have a great recovery. hopefully a near full recovery. he might always have some deficits, but it sounds like he is making amazing progress already. hang in there. you are a great aunt for the little guy. everyone needs an aunt like you.

That is fantastic news! Hand function is a really really good sign, especially with the diaphragm involvement and Horner's indications. Here's praying that the impact of the stretching was only temporary. Hugs to your little nephew.

Kate

Hi everyone. Just wanted to thank you again. It's so hard to see the people you love more than anything go through this. Little Cameron is home, with Oxygen to make sure his saturation levels are good, and monitors to make sure he is safe. They don't have an appointment with the pulmonologist until August 20. Cameron is still getting stronger with the hand on the affected side, but it's not totally normal. And now appears that on the other (left) side his little fingers are not all doing the same thing all the time, which is worrisome. I AM JUST PRAYING and praying that she gets some ANSWERS soon. The PT from Johns Hopkins is coming to their house on Wednesday to do an evaluation, but they have been told that Dr. Belzberg's office will call them to schedule the appointment. Of course, I just hope that happens soon. It's so hard to wait.

I am so sorry that I just never knew about this before. It has changed my, and my family's, life forever, and I want to be involved in doing something to increase peoples' awareness. Again, thank you all for your knowledge and encouragement.

Hi again, it is me, Cameron's Nana. Just wanted to let you know that it was actually a Nurse that came today to visit Cameron, we thought it was a PT. She checked him out and went over the paperwork from the hospital. She was concerned that my daughter had not been called yet from Dr. Belzberg's office. She called them and they stated that the hospital never sent the referral and then she called the hospital and left a message for the pediatrician as well. Apparently Dr. Belzberg is out until August 24th and the nurse felt he needs to be seen before then (praise the Lord!) and is working out a visit with another doctor in the office and to get the long awaited MRI. Still no appointment, but finally SOMETHING!

He is just so precious.